ArticleBMC geriatrics2016
Subjective burden among spousal and adult-child informal caregivers of older adults: results from a longitudinal cohort study.
Article in BMC geriatrics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 3 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
40 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Levels of positive aspects of caregiving and associated factors among family caregivers of older adults: a systematic review and meta-analysis.Frontiers in public health · 2026Pooled it
- Dyadic Interdependence in Non-spousal Caregiving Dyads' Wellbeing: A Systematic Review.Frontiers in psychology · 2022Pooled it
- Exploring the Needs of Spousal, Adult Child, and Adult Sibling Informal Caregivers: A Mixed-Method Systematic Review.Frontiers in psychology · 2022Pooled it
- Family quality of life and associated factors among people with leprosy or podoconiosis/lymphatic filariasis with visible disabilities and their family members in Ethiopia: a baseline study for a randomized controlled trial.Transactions of the Royal Society of Tropical Medicine and Hygiene · 2026Trial
- Wellbeing Among Caregivers of Veterans Who Applied for Comprehensive Caregiver Support Through the VA.Journal of general internal medicine · 2026Article
- Factors influencing the caregiver burden on primary family caregivers of stroke survivors: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- A Telehealth-Adapted Dementia Caregiver Skills Training Intervention (TeleCARE): Single-Arm Pre-Post Intervention Study.JMIR aging · 2026Article
- Evaluating the Applicability of the Self-Assessment Tool for Family Caregivers (SSA-PA) in Care Counseling According to Section 45 of the German Social Code (SGB XI): A Mixed-Methods Study.Healthcare (Basel, Switzerland) · 2026Article
- Is Perceived Family Cohesion Associated with Family Caregiver Role and Caregiver-Related Characteristics? A Comparison of Spousal and Adult-Child Caregivers.Healthcare (Basel, Switzerland) · 2026Article
- Neighborhood social cohesion and psychological distress among caregiving spouses with or without a nearby social support network.Frontiers in public health · 2026Article
- Patterns of multiple caregiving and the influence on depressive symptoms among middle-aged and older adults in China.European journal of ageing · 2025Article
- The relationship between lifestyle and the risk of depression among people living with someone who needs care: The Yamagata Cohort Study.Geriatrics & gerontology international · 2025Article
- Caregiver burden of Alzheimer's disease among informal caregivers: a cross-sectional study in Malaysia.Scientific reports · 2025Article
- The CarerQol Instrument: A Systematic Review, Validity Analysis, and Generalization Reliability Study.Journal of clinical medicine · 2025Review
- Association Between a Family Caregiver's Relationship to Persons With Dementia and Cardiovascular Disease by Race and Ethnicity: A Secondary Analysis of the Behavioral Risk Factor Surveillance System Data.Western journal of nursing research · 2025Article
- Characteristics of the needs of older people in Kazakhstan: a cross-sectional muliticentre study.Frontiers in public health · 2025Article
- Spouse and Child Caregivers' Experiences of Lucid Episodes in Dementia: A Mixed Methods Approach.Innovation in aging · 2025Article
- Financial train, health behaviors, and psychological well-being of family caregivers of older adults during the COVID-19 pandemic.PEC innovation · 2024Article
- Caregiving Intensity, Duration, and Subjective Financial Well-Being Among Rural Informal Caregivers of Older Adults with Chronic Illnesses or Disabilities.Healthcare (Basel, Switzerland) · 2024Article
- Longitudinal associations in dementia family caregivers of ambivalent feelings and disruptive behaviors with C-reactive protein, interleukin-6, and D-dimer.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2024Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPressures on informal caregivers are likely to increase due to increasing life expectancy and health care costs, which stresses the importance of prevention of subjective burden. The present study examined the correlates of overall subjective burden and multiple burden dimensions among spousal and adult-child caregivers of Dutch older adults, both cross-sectional and longitudinal (12-months follow-up).
methodsIn 2010 and 2011 baseline and follow-up data was collected in a sample of informal caregivers and care recipients in the Northern provinces of the Netherlands. Subjective burden included 7 burden dimensions and a summary score for overall subjective burden, based on the Care-Related Quality of Life Instrument (CarerQoL-7D). Objective stressors were the time investment in caregiving (hours of household care, personal care, practical care) and the health situation of the care recipient, including multimorbidity, functional limitations (Katz Index of Independence Basic Activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL), and cognitive functioning problems (EQ-5D + C). Correlates of subjective burden were evaluated with linear and logistic regression analyses.
resultsThe sample consisted of 356 caregivers at baseline (43% spousal, 57% adult-child caregivers), and 158 caregivers at follow-up (45% spousal, 55% adult-child caregivers). At baseline and follow-up, spousal caregivers experienced a higher overall subjective burden, and reported more often mental health problems, physical health problems, and problems with combining daily activities, compared to adult-child caregivers. For spousal caregivers, a poorer health situation of the care recipient was associated with higher subjective burden, while adult-child caregivers reported higher levels of subjective burden when their time investment in caregiving was high. Subjective burden at follow-up was mainly explained by baseline subjective burden.
conclusionsThese results indicate that for effective caregiver support, it is crucial to take the type of care relationship into account, since the level and correlates of overall subjective burden and burden dimensions varied for spousal and adult-child caregivers. In addition, reducing subjective burden will also positively impact the subjective burden over time.
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