ArticleThe American journal of bioethics : AJOB2016
Does Lack of "Genetic-Relative Family Health History" Represent a Potentially Avoidable Health Disparity for Adoptees?
Article in The American journal of bioethics : AJOB, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed.
- Unmet Health Care Needs of Adult Patients Adopted in Childhood: Insights and Recommendations.Annals of family medicine · 2025Article
- Misattributed paternity discovery: A critique of medical organizations' recommendations.American journal of human genetics · 2025Review
- A Qualitative Study of Primary Care Physicians' Approaches to Caring for Adult Adopted Patients.Annals of family medicine · 2025Article
- Clinically Indicated Genomic Sequencing of Children in Foster Care: Legal and Ethical Issues.The Journal of pediatrics · 2023Article
- Adoptees' views and experiences of direct-to-consumer (DTC) genomic testing: an exploratory interview study from the UK.Journal of community genetics · 2023Article
- Direct-to-Consumer Genetic Ancestry Testing in Clinical Encounters: Perspectives From Psychotherapy Cases.JMIR mental health · 2020Article
- Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions.PloS one · 2020Article
- The value of genetic testing for family health history of adopted persons.Nature reviews. Genetics · 2019Article
- Ethical Considerations in Adoption Research: Navigating Confidentiality and Privacy Across the Adoption Kinship Network.Adoption quarterly · 2019Article
- Autonomy, Well-Being, and the Value of Genetic Testing for Adopted Persons.HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues · 2018Article
- No Panacea: Next-Gen Sequencing Will Not Mitigate Adoptees' Lack of Genetic Family Health History.The American journal of bioethics : AJOB · 2016Article
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Many adoptees face a number of challenges relating to separation from biological parents during the adoption process, including issues concerning identity, intimacy, attachment, and trust, as well as (for older adopted children) language and other cultural challenges. One common health challenge faced by adoptees involves lack of access to genetic-relative family health history (GRFHx). Lack of GRFHx represents a disadvantage due to a reduced capacity to identify diseases and recommend appropriate screening for conditions for which the adopted person may be at increased risk. In this article, we draw out common features of traditionally understood "health disparities" in order to identify analogous features in the context of adoptees' lack of GRFHx.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.