ArticlePatient related outcome measures2016
Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion.
Article in Patient related outcome measures, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Measuring treatment burden related to general practice in patients with multimorbidity: development and validation of a PROM.Family medicine and community health · 2025Pooled it
- Mapping resilience: Development of the resilience process scales (RPS) and resilience profiles during adversity.PloS one · 2026Article
- Understanding data visualization techniques in qualitative studies used to develop and validate patient-reported outcome measures: a targeted literature review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Review
- Living well while providing support: validation of LTCQ-Carer for assessing informal carers' quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Development and testing of the reliability and validity of a Chinese version of the Long-Term Conditions Questionnaire.Zhejiang da xue xue bao. Yi xue ban = Journal of Zhejiang University. Medical sciences · 2023Article
- Assessing the Validity of the Long-Term Conditions Questionnaire (LTCQ) in Women During Pregnancy and the First Year Following Birth.Patient related outcome measures · 2022Article
- Use of the Long-Term Conditions Questionnaire (LTCQ) for monitoring health-related quality of life in people affected by cognitive impairment including dementia: pilot study in UK memory clinic services.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Rasch analysis of the long-term conditions questionnaire (LTCQ) and development of a short-form (LTCQ-8).Health and quality of life outcomes · 2020Article
- Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England.BMJ open · 2017Article
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeIt is a key UK government priority to assess and improve outcomes in people with long-term conditions (LTCs). We are developing a new patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), for use among people with single or multiple LTCs. This study aimed to refine candidate LTCQ items that had previously been informed through literature reviews, interviews with professional stakeholders, and interviews with people with LTCs. MATERIALS AND
methodsCognitive interviews (n=32) with people living with LTCs and consultations with professional stakeholders (n=13) and public representatives (n=5) were conducted to assess the suitability of 23 candidate items. Items were tested for content and comprehensibility and underwent a translatability assessment.
resultsFour rounds of revisions took place, due to amendments to item structure, improvements to item clarity, item duplication, and recommendations for future translations. Twenty items were confirmed as relevant to living with LTCs and understandable to patients and professionals.
conclusionThis study supports the content validity of the LTCQ items among people with LTCs and professional stakeholders. The final items are suitable to enter the next stage of psychometric refinement.
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