ArticleIntellectual and developmental disabilities2016
Is It Worth It? Benefits in Research With Adults With Intellectual Disability.
Article in Intellectual and developmental disabilities, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 2 syntheses or guidelines pooled it, 47 citations in OpenAlex.
- Barriers and Facilitators to Participation in Psychosocial Research for Adults With Intellectual Disabilities: A Systematic Review.Journal of applied research in intellectual disabilities : JARID · 2026Pooled it
- Responsible inclusion: A systematic review of consent to social-behavioral research with adults with intellectual disability in the US.Disability and health journal · 2024Pooled it
- Cancer screening learning for adults with intellectual disability.Canadian journal of public health = Revue canadienne de sante publique · 2026Trial
- "I make my own decisions": Views on precision medicine research participation decisions from adults with intellectual disability.HGG advances · 2026Article
- The impact paradox: mixed-methods evaluation of National Institute of Health and Care Research funding for intellectual disability research in the UK.BJPsych open · 2026Article
- Navigating care together: developing a collaborative checklist to improve care for children with intellectual disabilities.Research involvement and engagement · 2025Article
- A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation.Journal of intellectual disability research : JIDR · 2025Article
- Development of a problem-solving ability learning model for children with intellectual disabilities.Journal of education and health promotion · 2025Article
- Proxy Responses in Research on COVID-19 Among People With Intellectual and Developmental Disabilities.American journal on intellectual and developmental disabilities · 2024Article
- Development and Validation of Standardized Quality of Life Measures for Persons with IDD.Behavioral sciences (Basel, Switzerland) · 2023Article
- A Scoping Review of Health Research with Racially/Ethnically Minoritized Adults with Intellectual and Developmental Disabilities.Developmental disabilities network journal · 2023Article
- Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement.Journal of applied research in intellectual disabilities : JARID · 2022Article
- Community Conversations: Stakeholder-Identified Research Priorities to Foster Community Participation for Individuals With Intellectual and Developmental Disability.Frontiers in rehabilitation sciences · 2022Article
- A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research.Journal of intellectual disability research : JIDR · 2021Article
- Supporting New Community-Based Participatory Research Partnerships.International journal of environmental research and public health · 2018Article
- A quantitative study of attitudes toward the research participation of adults with intellectual disability: Do stakeholders agree?Disability and health journal · 2018Article
- What's the Harm? Harms in Research With Adults With Intellectual Disability.American journal on intellectual and developmental disabilities · 2017Article
- Is Safety in the Eye of the Beholder? Safeguards in Research With Adults With Intellectual Disability.Journal of empirical research on human research ethics : JERHRE · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
Including adults with intellectual disability in research promotes direct benefits to participants and larger societal benefits. Stakeholders may have different views of what count as benefits and their importance. We compared views on benefits in research with adults with intellectual disability among adults with intellectual disability, family and friends, service providers, researchers, and institutional review board members. We found that adults with intellectual disability value direct and indirect research benefits, and want to participate in research that offers them. Other stakeholders generally see less value in direct benefits and predict more tempered interest in research participation as compared to adults with intellectual disability. To promote respectful research participation, research policy and practice should incorporate the views of adults with intellectual disability.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.