Evidence map›Paper›PMID 27889257›Full record

ArticleBrazilian journal of otorhinolaryngology

Translation and cultural adaptation of the Shame and Stigma Scale (SSS) into Portuguese (Brazil) to evaluate patients with head and neck cancer.

William Eduardo Pirola, Bianca Sakamoto Ribeiro Paiva, Eliane Marçon Barroso, David W Kissane, Claudia Valéria Maseti Pimenta Serrano, Carlos Eduardo Paiva

Open access · goldAbstract readValidation Study
In one paragraph

Article in Brazilian journal of otorhinolaryngology. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
0.7field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 21 citations in OpenAlex.

  1. Article
  2. Article
  3. Factors associated with shame and stigma among head and neck cancer patients: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Article
  4. Assessment of Shame and Stigma in Head and Neck Cancer: A Meta-Analysis.Journal of maxillofacial and oral surgery · 2024
    Review
  5. Accuracy of a self-reported Measure in Psychological Assessment when the Instrument is self-administered by the Patient or when Administrated by the Clinician.Indian journal of otolaryngology and head and neck surgery : official publication of the Association of Otolaryngologists of India · 2023
    Article
  6. Article
  7. Media Commercials Conveying Awareness Regarding Prevention of Head and Neck Cancer by Focusing on Stigmatized Perspective of Disease: Right or Wrong?Indian journal of otolaryngology and head and neck surgery : official publication of the Association of Otolaryngologists of India · 2022
    Article
  8. Validation of the Malay Version of the Shame and Stigma Scale among Cancer Patients in Malaysia.International journal of environmental research and public health · 2022
    Article
  9. Article
  10. Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 2 countries.

William Eduardo PirolaHospital de Câncer de Barretos, Programa de Pós-graduação Stricto Sensu em Oncologia, Barretos, SP, Brazil. Electronic address: wepirola@gmail.com.
Bianca Sakamoto Ribeiro PaivaHospital de Câncer de Barretos, Programa de Pós-graduação Stricto Sensu em Oncologia, Barretos, SP, Brazil; Hospital de Câncer de Barretos, Grupo de Pesquisa em Cuidados Paliativos e Qualidade de Vida Relacionada à Saúde (GPQual), Barretos, SP, Brazil.
Eliane Marçon BarrosoHospital de Câncer de Barretos, Grupo de Pesquisa em Cuidados Paliativos e Qualidade de Vida Relacionada à Saúde (GPQual), Barretos, SP, Brazil.
David W KissaneMonash University, Departments of Psychiatry and Palliative Care, School of Clinical Sciences at Monash Health, Victoria, Australia.
Claudia Valéria Maseti Pimenta SerranoFaculdade de Ciência e Letras de Bebedouro, Graduação em Letras, Bebedouro, SP, Brazil.
Carlos Eduardo PaivaHospital de Câncer de Barretos, Programa de Pós-graduação Stricto Sensu em Oncologia, Barretos, SP, Brazil; Hospital de Câncer de Barretos, Grupo de Pesquisa em Cuidados Paliativos e Qualidade de Vida Relacionada à Saúde (GPQual), Barretos, SP, Brazil; Hospital de Câncer de Barretos, Departamento de Oncologia Clínica, Divisão Mama e Ginecologia, Barretos, SP, Brazil.
Hospital de Câncer de Barretos · BRMonash University · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionHead and neck cancer is the sixth leading cause of death from cancer worldwide and its treatment may involve surgery, chemotherapy and/or radiation therapy. The surgical procedure may cause mutilating sequelae, that can alter patient self-image. Thus, head and neck cancer is often connected to the negative stigma with decreased quality of life. Few studies assess the social stigma and shame perceived by patients with head and neck cancer.

objectiveTo perform the translation and cultural adaptation of the Shame and Stigma Scale (SSS) into Portuguese (Brazil).

methodsTwo independent translations (English into Portuguese) were carried out by two professionals fluent in the English language. After the synthesis of the translations, two independent back-translations (from Portuguese into English) were performed by two translators whose native language is English. All translations were critically assessed by a committee of experts consisting of five members. A sample of 15 patients answered the Brazilian Portuguese version of the SSS to carry out the pretest. At this step, the patients were able to suggest modifications and evaluate the understanding of the items.

resultsThere was no need to change the scale after this step. Based on the previous steps, we obtained the Portuguese (Brazil) version of the SSS, which was called "Escala de Vergonha e Estigma".

conclusionThe Portuguese (Brazil) version of the SSP was shown to be adequate to be applied to the population with HNC and, therefore, the psychometric properties of the tool will be evaluated during following steps.

Indexed as

ShameSocial StigmaTranslationsAgedBrazilCross-Cultural ComparisonCultural CharacteristicsFemaleHead and Neck NeoplasmsHumansLanguageMaleMiddle AgedQuality of LifeReproducibility of ResultsSickness Impact ProfileEstigma socialHead and neck cancerNeoplasias de cabeça e pescoçoQualidade de vidaQuality of lifeShameSocial stigmaVergonha

Identifiers

PMID27889257
PMCPMC9449165
OpenAlexW2549446774

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.