ArticleMedical education online2016
Translating sickle cell guidelines into practice for primary care providers with Project ECHO.
Article in Medical education online, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06562439 (Early Identification and Intervention Of Developmental Delay Among Infants And Toddlers With Sickle Cell Disease Using the Sickle Cell Caregiver Collaboration for Child Development), which is not on this map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Early Identification and Intervention Of Developmental Delay Among Infants And Toddlers With Sickle Cell Disease Using the Sickle Cell Caregiver Collaboration for Child Development (SCCCD) Intervention
Who cites it
21 citing papers in PubMed, 38 citations in OpenAlex.
- Early Developmental Screening and a Home-Based Caregiver Intervention for Infants and Toddlers With Sickle Cell Disease: Protocol for a Prospective Mixed Methods Study.JMIR research protocols · 2026Article
- Substance Use and Chronic Pain Management: Understanding the Learning Needs of Primary Care Clinicians Through Project ECHO.Healthcare (Basel, Switzerland) · 2025Article
- Project Extension for Community Healthcare Outcomes Intervention Evaluations: A Scoping Review of Research Methods.The Journal of continuing education in the health professions · 2025Article
- A Mixed-Methods Evaluation of a Project ECHO Program for the Evidence-Based Management of Sickle Cell Disease.International journal of environmental research and public health · 2024Article
- A health equity ECHO for clinicians of individuals with SCD.Journal of sickle cell disease · 2024Article
- Review
- Article
- Trends in quality of care among children with sickle cell anemia.Pediatric blood & cancer · 2022Article
- Expanding a Regional Sickle Cell Disease Project ECHOAdvances in medical education and practice · 2022Article
- Uptake of online HIV-related continuing medical education training among primary care providers in Southeast United States, 2017-2018.AIDS care · 2021Article
- Educational Needs of School Nurses Regarding the Evidence-Based Management of Sickle Cell Disease.International journal of environmental research and public health · 2021Article
- Article
- Article
- Designing a Multistakeholder Collaboration to Improve Preventive Care for Children With Sickle Cell Anemia.Journal of pediatric hematology/oncology · 2020Article
- Targeted Hydroxyurea Education after an Emergency Department Visit Increases Hydroxyurea Use in Children with Sickle Cell Anemia.The Journal of pediatrics · 2018Observational
- Technology use and preferences to support clinical practice guideline awareness and adherence in individuals with sickle cell disease.Journal of the American Medical Informatics Association : JAMIA · 2018Article
- Specialized Care without the Subspecialist: A Value Opportunity for Secondary Care.Children (Basel, Switzerland) · 2018Article
- Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers.BMC hematology · 2018Article
- A Needs Assessment of Persons With Sickle Cell Disease in a Major Medical Center in North Carolina.North Carolina medical journalArticle
- A National Measurement Framework to Assess and Improve Sickle Cell Care in 4 US Regions.Public health reports (Washington, D.C. : 1974)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 6 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundApproximately 100,000 persons with sickle cell disease (SCD) live in the United States, including 15,000 in the Midwest. Unfortunately, many patients experience poor health outcomes due to limited access to primary care providers (PCPs) who are prepared to deliver evidence-based SCD care. Sickle Treatment and Outcomes Research in the Midwest (STORM) is a regional network established to improve care and outcomes for individuals with SCD living in Indiana, Illinois, Michigan, Minnesota, Ohio, and Wisconsin.
methodsSTORM investigators hypothesized that Project ECHO
resultsNetwork leads in each of the STORM states assisted with developing the curriculum and are recruiting providers for monthly clinics. To assess STORM TeleECHO feasibility and acceptability, monthly attendance and satisfaction data are collected. Changes in self-reported knowledge, comfort, and practice patterns will be compared with pre-participation, and 6 and 12 months after participation.
conclusionsSTORM TeleECHO has the potential to increase implementation of the NHLBI evidence-based guidelines, especially increased use of hydroxyurea, resulting in improvements in the quality of care and outcomes for children and young adults with SCD. This model could be replicated in other pediatric chronic illness conditions to improve PCP knowledge and confidence in delivering evidence-based care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.