ArticleBMC medical ethics2016
Next of kin's experiences of involvement during involuntary hospitalisation and coercion.
Article in BMC medical ethics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Experiences and Perspectives of Families of Psychiatric Hospitalisation of Their Adult Family Member: A Qualitative Systematic Review.International journal of mental health nursing · 2025Pooled it
- "It has to be part of the clinic's lived culture"- perspectives of next of kin on meaningful participation in psychiatric care: a participatory thematic analysis.BMC psychiatry · 2026Article
- "As if we didn't exist" - A participatory reflexive thematic analysis on next of kins' experiences of their interactions with the psychiatric health care system in Germany.BMC psychiatry · 2025Article
- "Get Well Enough to Make the Right Decision for Themselves"-Experiences and Perspectives of Clinicians Working with People with Serious Mental Illness and Their Substitute Decision Makers.Behavioral sciences (Basel, Switzerland) · 2025Article
- Implementation of guidelines on Family Involvement for persons with Psychotic disorders: a pragmatic cluster randomized trial. Effect on relatives' outcomes and family interventions received.Frontiers in psychiatry · 2024Article
- Two years of ethics reflection groups about coercion in psychiatry. Measuring variation within employees' normative attitudes, user involvement and the handling of disagreement.BMC medical ethics · 2023Article
- Capacity-based legislation in Norway has so far scarcely influenced the daily life and responsibilities of patients' carers: a qualitative study.BMC psychiatry · 2023Article
- The duty of confidentiality during family involvement: ethical challenges and possible solutions in the treatment of persons with psychotic disorders.BMC psychiatry · 2022Article
- Patients with severe mental illness and the ethical challenges related to confidentiality during family involvement: A scoping review.Frontiers in public health · 2022Article
- Use of a quality improvement strategy to introduce co-design of the mental health discharge plan in rural and remote New South Wales.The Australian journal of rural health · 2021Article
- Carers' experiences of involuntary admission under mental health legislation: systematic review and qualitative meta-synthesis.BJPsych open · 2020Article
- The significance of ethics reflection groups in mental health care: a focus group study among health care professionals.BMC medical ethics · 2018Article
- Modern forensic psychiatric hospital design: clinical, legal and structural aspects.International journal of mental health systems · 2018Review
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4 authors.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundNorway has extensive and detailed legal requirements and guidelines concerning involvement of next of kin (NOK) during involuntary hospital treatment of seriously mentally ill patients. However, we have little knowledge about what happens in practice. This study explores NOK's views and experiences of involvement during involuntary hospitalisation in Norway.
methodsWe performed qualitative interviews-focus groups and individual-with 36 adult NOK to adults and adolescents who had been involuntarily admitted once or several times. The semi-structured interview guide included questions on experiences with and views on involvement during serious mental illness and coercion.
resultsMost of the NOK were heavily involved in the patient's life and illness. Their conceptions of involvement during mental illness and coercion, included many important aspects adding to the traditional focus on substitute decision-making. The overall impression was, with a few exceptions, that the NOK had experienced lack of involvement or had negative experiences as NOK in their encounters with the health services. Not being seen and acknowledged as important caregivers and co sufferers were experienced as offensive and could add to their feelings of guilt. Lack of involvement had as a consequence that vital patient information which the NOK possessed was not shared with the patient's therapists.
conclusionsDespite public initiatives to improve the involvement of NOK, the NOK in our study felt neglected, unappreciated and dismissed. The paper discusses possible reasons for the gap between public policies and practice which deserve more attention: 1. A strong and not always correct focus on legal matters. 2. Little emphasis on the role of NOK in professional ethics. 3. The organisation of health services and resource constraints. 4. A conservative culture regarding the role of next of kin in mental health care. Acknowledging these reasons may be helpful to understand deficient involvement of the NOK in voluntary mental health services.
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