ArticleHeart & lung : the journal of critical care
The palliative care needs of patients with idiopathic pulmonary fibrosis: A qualitative study of patients and family caregivers.
Article in Heart & lung : the journal of critical care. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 3 of them syntheses that pooled it.
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Who cites it
34 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- The burden of cough in idiopathic pulmonary fibrosis and other interstitial lung diseases: a systematic evidence synthesis.Respiratory research · 2024Pooled it
- An examination and proposed definitions of family members' grief prior to the death of individuals with a life-limiting illness: A systematic review.Palliative medicine · 2022Pooled it
- The supportive care needs of people living with pulmonary fibrosis and their caregivers: a systematic review.European respiratory review : an official journal of the European Respiratory Society · 2020Pooled it
- Perceptions of Need for Palliative Care in Recently Hospitalized Patients With Systolic Heart Failure.Journal of pain and symptom management · 2021Trial
- The impact of palliative care on quality of life, anxiety, and depression in idiopathic pulmonary fibrosis: a randomized controlled pilot study.Respiratory research · 2020Trial
- Consensus palliative care referral criteria for people with idiopathic pulmonary fibrosis: an international Delphi study.Annals of the American Thoracic Society · 2026Article
- Patient experiences of idiopathic pulmonary fibrosis (IPF) in China: a multicentre qualitative study.BMJ open respiratory research · 2026Article
- Contribution of Supportive Persons to Health-related Quality of Life among Family Caregivers of Patients with Interstitial Lung Disease: A Cross-sectional Study.Internal medicine (Tokyo, Japan) · 2026Article
- The Prognostic Significance of Bronchoalveolar Lavage Cellular Analysis in Evaluating Disease Burden in Non-Cystic Fibrosis Bronchiectasis.Life (Basel, Switzerland) · 2026Article
- Experiences of palliative care for patients with pulmonary fibrosis: A qualitative exploration of patients and partners perspectives.PloS one · 2026Article
- Article
- Differences in the palliative care phase between patients with nonmalignant pulmonary disease and lung cancer: a retrospective study.BMC palliative care · 2024Article
- Eating and drinking experience in patients with idiopathic pulmonary fibrosis: a qualitative study.BMJ open · 2024Article
- Interstitial lung disease: a review of classification, etiology, epidemiology, clinical diagnosis, pharmacological and non-pharmacological treatment.Frontiers in medicine · 2024Review
- A scoping review of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis (IPF).PloS one · 2024Article
- Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol.BMJ open · 2023Article
- Understanding patient experience of chronic cough in interstitial lung disease.ERJ open research · 2023Article
- Specialist Palliative Care Consultation for Patients with Nonmalignant Pulmonary Diseases: A Retrospective Study.Palliative medicine reports · 2023Article
- When should palliative care be introduced for people with progressive fibrotic interstitial lung disease? A meta-ethnography of the experiences of people with end-stage interstitial lung disease and their family carers.Palliative medicine · 2022Article
- Provider Perspectives on and Access to Palliative Care for Patients With Interstitial Lung Disease.Chest · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectivesTo explore the perceptions of palliative care (PC) needs in patients with idiopathic pulmonary fibrosis (IPF) and their caregivers.
backgroundIPF carries a poor prognosis with most patients succumbing to their illness at a rate comparable to aggressive cancers. No prior studies have comprehensively explored perceptions of PC needs from those currently living with the disease, caring for someone living with the disease, and who cared for a deceased family member.
methodsThematic analysis of focus group content was obtained from thirteen participants.
resultsFour themes described frustration with the diagnostic process and education received, overwhelming symptom burden, hesitance to engage in advance care planning, and comfort in receiving care from pulmonary specialty center because of resources.
conclusionsFindings support that patients and caregivers have informational needs and high symptom burden, but limited understanding of the potential benefits of PC. Future studies are needed to identify optimal ways to introduce early PC.
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