ReviewHealth expectations : an international journal of public participation in health care and health policy2017
Easy read and accessible information for people with intellectual disabilities: Is it worth it? A meta-narrative literature review.
Review in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
39 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Gender innovation in the scientific evidence on interventions to reduce health inequalities in Europe: an umbrella review.International journal for equity in health · 2026Pooled it
- Easy Read Health Information for People With Intellectual Disabilities: A Systematic Review of the Evidence.Journal of applied research in intellectual disabilities : JARID · 2026Pooled it
- Perceived Autonomy in People With Intellectual Disabilities: Psychometric Properties of an Easy-to-Read Self-Administered Scale.Journal of intellectual disability research : JIDR · 2026Article
- Pragmatic Reasonable Accommodation in Everyday Medicine for People With Intellectual Disabilities: A Qualitative Study of Non-Psychiatric Physicians in Japan.Journal of applied research in intellectual disabilities : JARID · 2026Article
- The Role of Sport Coaches in Promoting the Health and Wellbeing of Athletes with Developmental Disabilities.International journal of environmental research and public health · 2026Article
- 'Give People More Time and Take the Time to Explain Things Properly': Cervical Screening Experiences of People With Intellectual Disability.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Preventive breast health care, an embarrassing subject for women with intellectual disability.Journal of intellectual disabilities : JOID · 2026Article
- Online Health Literacy Resources for People With Intellectual Disability: A Grey Literature Scoping Review.Journal of intellectual disability research : JIDR · 2026Article
- Redesigning trials to be inclusive of people with a learning disability-a practical example.Trials · 2026Article
- Promoting Accessible Research for Children With Intellectual Disabilities; Lessons Learnt From Adaptations Through the Covid-19 Pandemic.Journal of intellectual disability research : JIDR · 2026Article
- From rugby to basketball: a comparative analysis on the implementation of mixed ability.Frontiers in sports and active living · 2026Article
- Exploring how Japanese pharmacists provide reasonable accommodations for persons with intellectual disabilities.BMC health services research · 2025Article
- Did I Take My Medication Today? Understanding Medication Self-Management for Adults With Intellectual Disabilities Through Participatory Research.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Association Between Digital Front Doors and Social Care Use for Community-Dwelling Adults in England: Cross-Sectional Study.Journal of medical Internet research · 2025Article
- Easy Read… Easy English… Plain Language? Decision-Making in the Production of 'Easy' Information in Australia.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Primary care experiences of adults reporting learning disability: a probability sample survey.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024Article
- Are quality of care instruments inclusive of older people living with dementia? A scoping review in long-term care settings.Dementia (London, England) · 2024Article
- Reflections on an Evidence Review Process to Inform the Co-Design of a Toolkit for Supporting End-of-Life Care Planning With People With Intellectual Disabilities.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- How Readable Is the Information the United Kingdom's Statutory Health and Social Care Professional Regulators Provide for the Public to Engage With Fitness to Practise Processes?Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Preliminary translation of 'Reducing Disability in Alzheimer's Disease' among individuals with intellectual disabilities and caregiver dyads.Journal of applied research in intellectual disabilities : JARID · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
backgroundThe proliferation of "accessible information" for people with intellectual disabilities in UK health care has accelerated in recent years, underpinned by policy guidance alongside the recent introduction of mandatory standards. However, questions have been raised as to the impact of such resources as a means of enhancing involvement in health care and addressing health inequalities.
objectiveTo review and synthesize the evidence from different approaches used to evaluate the impact of accessible information for people with intellectual disabilities using a meta-narrative approach. SEARCH STRATEGY: Literature searches were iterative and incorporated formal databases, grey literature and hand searches alongside more intuitive and opportunistic methods. INCLUSION CRITERIA: Included English language papers published before December 2015 described the design and evaluation of written information adapted for adults with intellectual disabilities. DATA EXTRACTION AND SYNTHESIS: We organized the papers into five groups according to similarity in authors' writing styles and presentation, epistemology and theoretical foundations, aims and methodologies, professional and organizational identities. MAIN
resultsThe 42 included papers in the five groupings occupied diverse positions on (i) public communication vs individualized materials, (ii) literacy as decontextualized skills vs social practices and (iii) the expertise of patients vs professionals. There was limited evidence for the impact of accessible health information, notwithstanding the potential benefits associated with their creation.
conclusionsIndividually tailored information is more likely to meet personalized health information needs for people with intellectual disabilities. The emergence of different social formations in the creation of accessible information has potential for advancing engagement of diverse groups.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.