ArticleJournal of autism and developmental disorders2017
"It was like walking without knowing where I was going": A Qualitative Study of Autism in a UK Somali Migrant Community.
Article in Journal of autism and developmental disorders, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06373588 (Co-design and Evaluation of a Patient Navigator Intervention for Migrant Children and Youth with Special Healthcare Needs), which is not on this map. Cited by 32 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Co-design and Evaluation of a Patient Navigator Intervention for Migrant Children and Youth with Special Healthcare Needs (CYSHCN) Experiencing Care Transitions (MiNav Trial)
Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it, 89 citations in OpenAlex.
- A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe.Autism research : official journal of the International Society for Autism Research · 2020Pooled it
- Between neuroaffirmation and access: Parents' experiences of autism caregiving in England.PloS one · 2026Article
- Resilience interventions for the family with autistic children: a systematic review.Frontiers in psychology · 2026Review
- Perceptions of autism and experiences of stigma among Somali and Eritrean immigrant parents in Norway: a qualitative study.Frontiers in child and adolescent psychiatry · 2026Article
- Navigating fragmented and contingent support: A qualitative study of British Armed Forces families raising neurodivergent children.PloS one · 2026Article
- Supporting Immigrant Families in Special Education: Insights and Collaborative Strategies for School-Based ABA Practitioners.Behavior analysis in practice · 2025Review
- Should Parents Only Use One Language with Their Autistic Children? The Relations Between Multilingualism, Children's Social Skills, and Parent-Child Communication.Journal of autism and developmental disorders · 2025Article
- Help-Seeking Experiences among Burmese American Families of Children with Autism Spectrum Disorder: A Multi-Informant Qualitative Study.Asian American journal of psychology · 2025Article
- Article
- Navigating racism, stigma, and autism services: A scoping review of the lived experiences of racially and ethnically minoritized families.PLOS mental health · 2025Article
- Racial and Practical Barriers to Diagnostic and Treatment Services for Black Families of Autistic Youth: A Mixed-Method Exploration.Journal of autism and developmental disorders · 2024Article
- Strategies and sacrifices of family caregiving in the Somali-American community: a qualitative study.BMC health services research · 2024Article
- Article
- "The package has been opened"- parents' perspective and social validity of an Early Start Denver Model intervention for young children with autism.Frontiers in child and adolescent psychiatry · 2024Article
- Social inclusion of children with autism spectrum disorders and mothers' mental health in two Arabic-speaking countries: a mediational model of culture and resilience.International journal of developmental disabilities · 2024Article
- Developmental referrals of pre-school children in a diverse community in England: The importance of parental migration for referral rates.Child: care, health and development · 2023Observational
- Support Needs and Parent Outcomes in Arab Families of Children with Autism Living in the United Kingdom.Brain sciences · 2022Article
- Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood.Pediatric research · 2022Review
- Understanding Stigma in Autism: A Narrative Review and Theoretical Model.Autism in adulthood · 2022Review
- End-user perspectives on the development of an online intervention for parents of children on the autism spectrum.Autism : the international journal of research and practice · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In partnership with the local Somali community the research team conducted 15 in-depth interviews with parents affected by autism. Two themes are reported; 'Perceptions of Autism' and 'Navigating the System'. Our research shows the importance of understanding cultural views of autism and the need to raise awareness, reduce stigma and provide support to encourage families not to delay seeking help for their children.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.