ArticlePatient preference and adherence2016
Development and validation of a specific questionnaire to assess health-related quality of life in patients with home enteral nutrition: NutriQoL
Article in Patient preference and adherence, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it, 29 citations in OpenAlex.
- A systematic review of quality of life research in medicine and health sciences.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Pooled it
- The Effect of Enteral Tube Feeding on Patients' Health-Related Quality of Life: A Systematic Review.Nutrients · 2019Pooled it
- Understanding the impact of percutaneous endoscopic gastrostomy on patient and caregiver well-being: A health-related quality-of-life assessment in indian population.Indian journal of gastroenterology : official journal of the Indian Society of Gastroenterology · 2026Article
- Identifying risk factors associated with the health-related quality of life for coronary heart diseases elderly using association rule mining.Scientific reports · 2025Article
- Best Evidence Summary of Home Enteral Tube Feeding Care Management in the Elderly.Patient preference and adherence · 2025Review
- Assessing Health-Related Quality of Life in Patients Receiving Home Enteral Nutrition with a Disease-Specific Tool (NutriQoLPatient preference and adherence · 2025Article
- Development and Validation of a Questionnaire to Measure Feeding Challenges and Nutritional Problems Associated With Long-Term Enteral Nutrition Among Children With Disabilities.Risk management and healthcare policy · 2025Article
- Home Parenteral and Enteral Nutrition.Nutrients · 2022Review
- Acceptability and face validity of two mental health screening tools for use in the routine surgical setting.BMC psychology · 2021Article
- Specific Quality of Life Assessment by the NutriQoL® Questionnaire Among Patients Receiving Home Enteral Nutrition.JPEN. Journal of parenteral and enteral nutrition · 2021Article
- Survey of Psychosocial Issues of Nasogastric Tube Feeding in Head-and-Neck Cancer Patients.Indian journal of palliative careArticle
Corrections and comments
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Authors and funding
9 authors at 8 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionHome enteral nutrition (HEN) is indicated in patients with a functional gastrointestinal tract but who are unable to meet their nutritional requirements with normally consumed foodstuffs. HEN allows patients to remain in their social and family environment, thus reducing complications and costs associated with hospital admission, while increasing health-related quality of life (HRQoL). HRQoL in patients with HEN is mainly evaluated by generic instruments, which are not sensitive enough to identify certain specific patient-related outcomes of HEN.
objectiveTo develop a specific instrument to measure HRQoL in patients receiving HEN whose results allow interpretation regardless of the underlying disease and nutritional support administration route: the NutriQoL MATERIALS AND
methodsThe development of the NutriQoL entailed a literature review, focus groups with experts, semistructured interviews with patients, an assessment of face validity and feasibility, and Rasch analysis conducted on data from a sample of 141 patients and 24 caregivers.
resultsOf the 52 items initially proposed on the basis of the literature review, expert focus group, and semi-structured interviews with patients and caregivers, 17 items were finally selected through the development process to make up the final version of the NutriQoL, as well as a visual analog scale for global HRQoL scoring. The selected items were evaluated as adequate for frequency, importance, and clarity. Furthermore, they have been shown to be independent of the underlying condition and HEN administration route.
conclusionA new instrument for measuring the HRQoL of patients with HEN in Spain has been developed, whose results are independent of the underlying condition and administration route. The next step will be the validation of the questionnaire to ensure that the instrument is valid, reliable, and sensitive to health status changes in patients, to be used periodically in usual clinical practice.
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