ArticleInternational urogynecology journal2017
Barriers to seeking care for accidental bowel leakage: a qualitative study.
Article in International urogynecology journal, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 3 syntheses or guidelines pooled it, 44 citations in OpenAlex.
- A mixed methods systematic literature review of barriers and facilitators to help-seeking among women with stigmatised pelvic health symptoms.BMC women's health · 2024Pooled it
- Barriers to Urogynecologic Care for Racial and Ethnic Minority Women: A Qualitative Systematic Review.Urogynecology (Philadelphia, Pa.) · 2023Pooled it
- A systematic review of non-invasive modalities used to identify women with anal incontinence symptoms after childbirth.International urogynecology journal · 2019Pooled it
- Post-Market Study Evaluating Performance of the Rechargeable InterStim™ Micro System in Fecal Incontinence Patients.International urogynecology journal · 2025Trial
- A Digital Therapeutic Pelvic Health System Improves Fecal Incontinence Symptoms in a Real-World Patient Cohort.Diseases of the colon and rectum · 2026Observational
- Awareness and barriers of sacral neuromodulation in women with overactive bladder.Archives of gynecology and obstetrics · 2024Article
- Men and women experience different barriers to care seeking for fecal incontinence.Neurourology and urodynamics · 2023Article
- Clinical outcomes with of the Contix Faecal Incontinence Management System: preliminary results.Annals of coloproctology · 2023Article
- Validation of the Monitoring Efficacy of Neurogenic Bowel Treatment on Response (MENTOR) Tool in a Japanese Rehabilitation Setting.Journal of clinical medicine · 2021Article
- Fecal Incontinence in the Elderly.Clinics in geriatric medicine · 2021Review
- Reasons Behind Preferences for Community-Based Continence Promotion.Female pelvic medicine & reconstructive surgery · 2020Article
- Diet Modifications in Older Women With Fecal Incontinence: A Qualitative Study.Female pelvic medicine & reconstructive surgery · 2020Article
- Living with Urinary Incontinence: Potential Risks of Women's Health? A Qualitative Study on the Perspectives of Female Patients Seeking Care for the First Time in a Specialized Center.International journal of environmental research and public health · 2019Article
- Enhancing Screening Systems to Facilitate Hearing-Healthcare Access: A Qualitative Study.Journal of the American Academy of Audiology · 2019Article
- Validation of an instrument to assess barriers to care-seeking for accidental bowel leakage in women: the BCABL questionnaire.International urogynecology journal · 2017Article
- If We Don't Ask, They Won't Tell: Screening for Urinary and Fecal Incontinence by Primary Care Providers.Journal of the American Board of Family Medicine : JABFMArticle
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
introduction and hypothesisFewer than 50 % of women with urinary incontinence (UI) and 30 % of women with accidental bowel leakage (ABL) seek care. We sought to describe barriers to care seeking for ABL to inform development of an instrument to measure these barriers.
methodsWe recruited women with ABL with varied prior care-seeking experiences to participate in focus groups and cognitive interviews so we could understand factors that may have prevented or delayed care seeking. Focus groups continued until thematic saturation was reached using conventional content analysis. Final themes were established and characterized by comparing within and across the focus groups and with previously described UI and ABL care-seeking barriers. Cognitive interviews were confirmatory.
resultsThirty-nine women (aged 46-85) participated in six focus groups and ten cognitive interviews; 89 % were white, 8 % African American, and 3 % Latina. We identified 12 barriers to seeking care for ABL: (1) Lack of knowledge about the condition; (2) Lack of knowledge about treatment; (3) Fear of testing/treatment; (4) Normative thinking; (5) Avoidance/denial; (6) Life impact; (7) Embarrassment/shame; (8) Self-blame; (9) Stigma; (10) Isolation; (11) Provider barriers; (12) Access limitations. These 12 barriers encompassed three overarching themes: the internalized self in relation to ABL; perceptions about ABL and its treatments; and interaction with the healthcare system.
conclusionsABL care-seeking barriers are similar to those described for UI, with the notable addition of lack of knowledge that ABL is a medical condition experienced by others. Interventions to promote access to effective treatments for ABL should include information about prevalence and treatability.
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