ArticlePerspectives in health information managemen2016
Improving the Collection of Race, Ethnicity, and Language Data to Reduce Healthcare Disparities: A Case Study from an Academic Medical Center.
Article in Perspectives in health information managemen, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Electronic health record data quality assessment and tools: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2023Pooled it
- The quality of social determinants data in the electronic health record: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2021Pooled it
- Does the association between early life growth and later obesity differ by race/ethnicity or socioeconomic status? A systematic review.Annals of epidemiology · 2017Pooled it
- Sustained improvement in caregiver-reported infant demographic collection: a pilot towards equitable outcomes in the neonatal intensive care unit.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Statistical Accuracy of Administratively Recorded Race/Ethnicity in the Military Health System and Race/Ethnicity Ascertained via Questionnaire.Journal of racial and ethnic health disparities · 2026Article
- Collection and Use of Patient Demographic Information at US Dental School Clinics.Journal of dental education · 2026Article
- Targeted intervention and monitoring of sex assigned at birth, sexual orientation, and gender identity data scale-up: the intersection of research, policy, and patient care.Journal of the National Cancer Institute. Monographs · 2025Article
- Evaluating the completeness of electronic health records in dental education: a big data study.Frontiers in oral health · 2025Article
- Why Collect and Use Race/Ethnicity Data? A Qualitative Case Study on the Perspectives of Mental Health Providers and Patients During COVID-19.International journal of environmental research and public health · 2024Article
- Error Rates in Race and Ethnicity Designation Across Large Pediatric Health Systems.JAMA network open · 2024Article
- Demographic and socioeconomic characteristics of patients diagnosed with autism through the Rapid Interactive screening Test for Autism in Toddlers.Pediatric investigation · 2024Article
- Families as partners in neonatal neuro-critical care programs.Pediatric research · 2024Review
- Racial Disparities in Selected Complications and Comorbidities among People with Type 2 Diabetes.Healthcare (Basel, Switzerland) · 2024Article
- Assessing the accuracy of electronic health record gender identity and REaL data at an academic medical center.BMC health services research · 2023Article
- Social Risk Screening and Response Equity: Assessment by Race, Ethnicity, and Language in Community Health Centers.American journal of preventive medicine · 2023Article
- Gaps in the Identification of Child Race and Ethnicity in a Pediatric Emergency Department.The western journal of emergency medicine · 2023Article
- A Scoping Review of Approaches to Improving Quality of Data Relating to Health Inequalities.International journal of environmental research and public health · 2022Article
- Generating real-world data from health records: design of a patient-centric study in multiple sclerosis using a commercial health records platform.JAMIA open · 2022Article
- Data disaggregation: the case of Asian and Pacific Islander data and the role of health sciences librarians.Journal of the Medical Library Association : JMLA · 2022Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Well-designed electronic health records (EHRs) must integrate a variety of accurate information to support efforts to improve quality of care, particularly equity-in-care initiatives. This case study provides insight into the challenges those initiatives may face in collecting accurate race, ethnicity, and language (REAL) information in the EHR. We present the experience of an academic medical center strengthening its EHR for better collection of REAL data with funding from the EHR Incentive Programs for meaningful use of health information technology and the Texas Medicaid 1115 Waiver program. We also present a plan to address some of the challenges that arose during the course of the project. Our experience at an academic medical center can provide guidance about the likely challenges similar institutions may expect when they implement new initiatives to collect REAL data, particularly challenges regarding scope, personnel, and other resource needs.
Indexed as
Identifiers
27843424PMC5075235What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.