ArticleBMC medical informatics and decision making2016
Feasibility of digital footprint data for health analytics and services: an explorative pilot study.
Article in BMC medical informatics and decision making, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Data Analytics and Administrative Decision-Making in Nursing Management: A Systematic Review.Journal of nursing management · 2025Pooled it
- Digital Transformation in Healthcare: Technology Acceptance and Its Applications.International journal of environmental research and public health · 2023Article
- Rehabilitation Needs of Head and Neck Cancer Patients and Stakeholders: Case Study.Frontiers in oncology · 2021Article
- Data-Driven Personalization of a Physiotherapy Care Pathway: Case Study of Posture Scanning.JMIR rehabilitation and assistive technologies · 2020Article
- Connected Health User Willingness to Share Personal Health Data: Questionnaire Study.Journal of medical Internet research · 2019Article
- Psychology of personal data donation.PloS one · 2019Article
- Monitoring Twitter Conversations for Targeted Recruitment in Cancer Trials in Los Angeles County: Protocol for a Mixed-Methods Pilot Study.JMIR research protocols · 2018Article
- Consumer Adoption of Future MyData-Based Preventive eHealth Services: An Acceptance Model and Survey Study.Journal of medical Internet research · 2017Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAs a result of digitalization, data is available about almost every aspect of our lives. Personal data collected by individuals themselves or stored by organizations interacting with people is known as a digital footprint. The purpose of this study was to identify prerequisites for collecting and using digital data that could be valuable for health data analytics and new health services.
methodsResearchers and their contacts involved in a nationwide research project focusing on digital health in Finland were asked to participate in a pilot study on collecting their own personal data from various organizations of their own choice, such as retail chains, banks, insurance companies, and healthcare providers. After the pilot, a qualitative inquiry was adopted to collect semi-structured interview data from twelve active participants in the pilot. Interviews comprised themes such as the experiences of collecting personal data, as well as the usefulness of the data in general and for the participants themselves. Interview data was then analyzed thematically.
resultsEven if the participants had an academic background and were highly motivated to collect and use their data, they faced many challenges, such as quite long delays in the provision of the data, and the unresponsiveness of some organizations. Regarding the usefulness of the acquired personal data, our results show that participants had high expectations, but they were disappointed with the small amount of data and its irrelevant content. For the most part, the data was not in a format that would be useful for health data analytics and new health services. Participants also found that there were actual mistakes in their health data reports.
conclusionsThe study revealed that collecting and using digital footprint data, even by knowledgeable individuals, is not an easy task. As the usefulness of the acquired personal health data mainly depended on its form and usability for services or solutions relevant to an individual, rather than on the data being valuable as such, more emphasis should be placed on providing the data in a reusable form.
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