ArticleNeurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology2017
Quality of life in persons after traumatic brain injury as self-perceived and as perceived by the caregivers.
Article in Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Psychometrics, diagnostics and usability of Italian tools assessing behavioural and functional outcomes in neurological, geriatric and psychiatric disorders: a systematic review.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2022Pooled it
- Depression, Anxiety, and Stress After Acquired Brain Injury: The Role of Cognitive Reserve in Patients and Caregivers 'Symptoms.Journal of central nervous system disease · 2026Article
- Association Between Disability and Life Satisfaction, Participation, and Psychological Health: A Traumatic Brain Injury Model Systems Study.Neurology · 2025Article
- A scoping review on the challenges, improvement programs, and relevant output metrics for neurotrauma services in major trauma centers.Surgical neurology international · 2022Article
- Predictive Factors of Self-Reported Quality of Life in Acquired Brain Injury: One-Year Follow-Up.International journal of environmental research and public health · 2021Article
- Neuropsychological Impairment, Brain Injury Symptoms, and Health-Related Quality of Life After Pediatric TBI in Oslo.Frontiers in neurology · 2021Article
- Assessment of Executive Function in Patients with Traumatic Brain Injury with the Wisconsin Card-Sorting Test.Brain sciences · 2020Review
- Quality of life up to 10 years after traumatic brain injury: a cross-sectional analysis.Health and quality of life outcomes · 2020Article
- Adaptation and validation of the self-report version of the scale for measuring quality of life in people with acquired brain injury (CAVIDACE).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Religious Coping in Caregiver of Patients with Acquired Brain Injuries.Journal of religion and health · 2019Article
- Health-Related Quality of Life Profiles among Patients with Different Road Traffic Injuries in an Urban Setting of Vietnam.International journal of environmental research and public health · 2019Article
- Theory of Mind after Severe Acquired Brain Injury: Clues for Interpretation.BioMed research international · 2018Review
- German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors.PloS one · 2017Article
- Longitudinal study of quality of life in acquired brain injury: A self- and proxy-report evaluation.International journal of clinical and health psychology : IJCHPArticle
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Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The primary aim of the study was to adopt QOLIBRI (quality of life after brain injury) questionnaire in a proxy version (Q-Pro), i.e., to use caregivers for comparison and to evaluate whether TBI patients' judgment corresponds to that of their caregivers since the possible self-awareness deficit of the persons with TBI. A preliminary sample of 19 outpatients with TBI and their proxies was first evaluated with the Patient Competency Rating Scale to assess patients' self-awareness; then they were evaluated with the QOLIBRI Patient version (Q-Pt) and a patient-centered version of the Q-Pro. Subsequently, 55 patients and their caregivers were evaluated using the patient-centered and the caregiver-centered Q-Pro versions. Q-Pt for assessing Quality of Life (QoL) after TBI, as patients' subjective perspective and Q-Pro to assess the QoL of patients as perceived by the caregivers. The majority of patients (62.2%) showed better self-perception of QoL than their proxies; however, patients with low self-awareness were less satisfied than patients with adequate self-awareness. Low self-awareness does not impair the ability of patients with TBI to report on satisfaction with QoL as self-perceived.
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