ArticleNeurology2016
Feasibility of the collection of patient-reported outcomes in an ambulatory neurology clinic.
Article in Neurology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Quality of life during usual epilepsy care for anxiety or depression symptoms: Secondary patient-reported outcomes in a randomized trial of remote assessment methods.Epilepsy research · 2024Trial
- Provider Experiences With Systematically Administered Patient-Reported Outcome Measures in Multiple Sclerosis: A Qualitative Sub-Study.Neurology. Clinical practice · 2025Article
- Implementing electronic health record-based anxiety and depression screening in an epilepsy clinic: Theory-based implementation strategy and pre-post quantitative outcomes using Reach, Effectiveness, Adoption, Implementation, and Maintenance.Journal of clinical and translational science · 2025Article
- Impact of immigration background on feasibility of electronic patient-reported outcomes in advanced urothelial cancer patients.Health and quality of life outcomes · 2024Article
- Improving Seizure Frequency Documentation and Classification.Neurology. Clinical practice · 2023Article
- Usage and impact of patient-reported outcomes in epilepsy.Brain and behavior · 2023Article
- Feasibility of PROMIS using computerized adaptive testing during inpatient rehabilitation.Journal of patient-reported outcomes · 2023Article
- The implementation, use and impact of patient reported outcome measures in value-based healthcare programmes: A scoping review.PloS one · 2023Article
- Article
- Barriers and Enablers to Using a Patient-Facing Electronic Questionnaire: A Qualitative Theoretical Domains Framework Analysis.Journal of medical Internet research · 2020Article
- Primary Care Pre-Visit Electronic Patient Questionnaire for Asthma: Uptake Analysis and Predictor Modeling.Journal of medical Internet research · 2020Article
- Article
- Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis.Journal of neurology · 2020Article
- Patient Reported Outcomes Measurements Information System in Stroke Patients in Full and Shortened Format.Frontiers in neurology · 2020Article
- Implementation of quality measures and patient-reported outcomes in an epilepsy clinic.Neurology · 2019Article
- Patient-initiated versus fixed-interval patient-reported outcome-based follow-up in outpatients with epilepsy: a pragmatic randomized controlled trial.Journal of patient-reported outcomes · 2019Article
- Characteristics of Future Models of Integrated Outpatient Care.Healthcare (Basel, Switzerland) · 2019Review
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objectiveTo determine whether patients could self-report physical and mental health assessments in the waiting room and whether these assessments would be associated with modified Rankin Scale (mRS) and Quality of Life in Epilepsy (QOLIE-10) scores.
methodsWe offered iPad-based surveys to consecutive adult neurology patients at check-in to collect patient-reported outcome measures (PROMs). We collected demographic and clinical data on 6,075 patients through survey or administrative claims and PROMs from participating patients. We compared demographic characteristics of participants and nonparticipants and tested associations between physical and mental health scores and mRS and QOLIE-10.
resultsOf 6,075 patients seen by neurologists during the study period, 2,992 (49.3%) participated in the survey. Compared to nonparticipating patients, participating patients more often were privately insured (53.5% vs 42.7%, p < 0.01), married (51.5% vs 47.9%, p < 0.01), and seen in general neurology (nonsubspecialty) clinics (53.1% vs 46.6%, p < 0.01) and more likely to report English as their preferred language (50.1% vs 38.4%, p < 0.01). Participating patients had a mean physical health T score of 28.7 (SD 15) and mental health T score of 33 (SD 15), which were 3 and 2 SD worse than the average for the US general population, respectively. Mean T scores in every category of the mRS were different from every other category (n = 232, p < 0.01). Patient Reported Outcomes Measurement Information System-10 T scores were linearly associated with QOLIE-10 scores (n = 202, p < 0.01)
conclusionsSystematic digital collection of PROMs is feasible. Differences among survey participants and nonparticipants highlight the need to develop multilingual measurement tools that may improve collection from vulnerable populations.
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