ArticleBritish journal of cancer2016
Determining cancer survivors' preferences to inform new models of follow-up care.
Article in British journal of cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 7 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Patient-Facing AI-Enabled Digital Health Technologies and Quality of Life in Cancer: Systematic Review and Exploratory Meta-Analysis.JMIR mHealth and uHealth · 2026Pooled it
- Effectiveness of Continuity of Care Interventions Linking Hospital Care to Primary Healthcare for Patients With Cancer: A Systematic Review and Meta-Analysis.Cancer medicine · 2026Pooled it
- Preferences of Cancer Survivors for Follow-Up Care: A Systematic Review of Discrete Choice Experiments.The patient · 2025Pooled it
- Preferences of cancer survivors for follow-up care: a systematic review of discrete choice experiments.BMC health services research · 2024Pooled it
- Current Practices for Accounting for Preference Heterogeneity in Health-Related Discrete Choice Experiments: A Systematic Review.PharmacoEconomics · 2022Pooled it
- Factors influencing the translation of shared cancer follow-up care into clinical practice: a systematic review.BMJ open · 2022Pooled it
- Discrete Choice Experiments in Health Economics: Past, Present and Future.PharmacoEconomics · 2019Pooled it
- Preferences for interventions designed to increase cervical screening uptake in non-attending young women: How findings from a discrete choice experiment compare with observed behaviours in a trial.Health expectations : an international journal of public participation in health care and health policy · 2020Trial
- Optimizing Virtual Follow-Up Care: Realist Evaluation of Experiences and Perspectives of Patients With Breast and Prostate Cancer.Journal of medical Internet research · 2025Article
- Eliciting Older Cancer Patients' Preferences for Follow-Up Care to Inform a Primary Healthcare Follow-Up Model in China: A Discrete Choice Experiment.The patient · 2024Article
- Virtual follow-up care among breast and prostate cancer patients during and beyond the COVID-19 pandemic: Association with distress.Cancer medicine · 2024Article
- Fear of cancer recurrence in young women 5 years after diagnosis with a good-prognosis cancer: the VICAN-5 national survey.Journal of cancer survivorship : research and practice · 2023Article
- Whether preferences of gastric cancer patients after surgery for follow-up change over time? Analysis based on discrete choice experiment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Patient and Public Preferences for Coordinated Care in Switzerland: Development of a Discrete Choice Experiment.The patient · 2022Review
- Primary care physicians' perceptions concerning engagement in cancer survivor care.Journal of general and family medicine · 2022Article
- Improved models of care for cancer survivors.Lancet (London, England) · 2022Review
- Preferences of gastric cancer survivors for follow-up care-a multicenter discrete choice experiment study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- The Colorectal Telephone Clinic: a new normal post-COVID-19?Annals of the Royal College of Surgeons of England · 2021Article
- A qualitative evaluation of the impact of a training programme on colorectal cancer risk reduction for Specialist Screening Practitioners on health promotion, knowledge and practice.European journal of cancer care · 2021Article
- Changes in primary care provider utilization by phase of care for women diagnosed with breast cancer: a CanIMPACT longitudinal cohort study.BMC family practice · 2019Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundSpecialist-led cancer follow-up is becoming increasingly expensive and is failing to meet many survivors' needs. Alternative models informed by survivors' preferences are urgently needed. It is unknown if follow-up preferences differ by cancer type. We conducted the first study to assess British cancer survivors' follow-up preferences, and the first anywhere to compare the preferences of survivors from different cancers.
methodsA discrete choice experiment questionnaire was mailed to 1201 adults in Northeast Scotland surviving melanoma, breast, prostate or colorectal cancer. Preferences and trade-offs for attributes of cancer follow-up were explored, overall and by cancer site.
results668 (56.6%) recipients (132 melanoma, 213 breast, 158 prostate, 165 colorectal) responded. Cancer survivors had a strong preference to see a consultant during a face-to-face appointment when receiving cancer follow-up. However, cancer survivors appeared willing to accept follow-up from specialist nurses, registrars or GPs provided that they are compensated by increased continuity of care, dietary advice and one-to-one counselling. Longer appointments were also valued. Telephone and web-based follow-up and group counselling, were not considered desirable. Survivors of colorectal cancer and melanoma would see any alternative provider for greater continuity, whereas breast cancer survivors wished to see a registrar or specialist nurse, and prostate cancer survivors, a general practitioner.
conclusionsCancer survivors may accept non-consultant follow-up if compensated with changes elsewhere. Care continuity was sufficient compensation for most cancers. Given practicalities, costs and the potential to develop continuous care, specialist nurse-led cancer follow-up may be attractive.
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