ArticleJournal of developmental and behavioral pediatrics : JDBP
Unmet Health Services Needs Among US Children with Developmental Disabilities: Associations with Family Impact and Child Functioning.
Article in Journal of developmental and behavioral pediatrics : JDBP. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05909670 (FASTT Telehealth Behavioral Support Service for Caregivers of Children With Developmental Delay or Disability), which is not on this map. Cited by 23 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
FASTT Telehealth Behavioral Support Service for Caregivers of Children With Developmental Delay or Disability
Who cites it
23 citing papers in PubMed.
- A Virtual Resiliency Intervention for Parents of Children with Autism: A Randomized Pilot Trial.Journal of autism and developmental disorders · 2020Trial
- How Do Parents Experience Overnight Respite? Parent-Reported Outcomes in Families of Children With Intellectual and Developmental Disabilities.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Pre-pandemic and pandemic healthcare utilisation among children with intellectual disabilities compared to the general population: a register study (IDcare).BMJ paediatrics open · 2026Article
- Identifying challenges in meeting the unmet health care needs of children with intellectual disabilities: a scoping review.BMC health services research · 2025Article
- Alternative Diagnoses in the Work Up of Down Syndrome Regression Disorder.Journal of autism and developmental disorders · 2025Article
- Requirements for and Barriers to Rehabilitation Services for Children With Disabilities in Middle- and High-Income Countries: Scoping Review.Interactive journal of medical research · 2024Article
- Predictors of Access to Early Support in Families of Children with Suspected or Diagnosed Developmental Disabilities in the United Kingdom.Journal of autism and developmental disorders · 2024Article
- Leadership academy for excellence in disability services: evaluation of outcomes for state employees.International journal of developmental disabilities · 2024Article
- Parent Ratings of Health Insurance Adequacy for Children with Emotional, Behavioral, or Developmental Problems.Academic pediatrics · 2023Article
- Adaptation of the Parents Taking Action Program for Diné (Navajo) Parents of Children with Autism.Frontiers in education · 2023Article
- Article
- "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children.Journal of autism and developmental disorders · 2022Article
- Comparison of unmet health care needs in children with intellectual disability, autism spectrum disorder and both disorders combined.Journal of intellectual disability research : JIDR · 2022Article
- Underinsurance Among Children in the United States.Pediatrics · 2022Article
- Utilization of Parallel Resources and Sociodemographic Factors in Treating Children with Complex Chronic Diseases: A Cross-Sectional Study.Children (Basel, Switzerland) · 2021Article
- Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware.Autism research : official journal of the International Society for Autism Research · 2021Article
- Mental health of parents of children with autism spectrum disorder during COVID-19 pandemic: A systematic review.World journal of psychiatry · 2021Article
- A Profile of Care Coordination, Missed School Days, and Unmet Needs Among Oregon Children with Special Health Care Needs with Behavioral and Mental Health Conditions.Community mental health journal · 2020Article
- Family-Centered Care Coordination in an Interdisciplinary Neurodevelopmental Evaluation Clinic: Outcomes From Care Coordinator and Caregiver Reports.Frontiers in pediatrics · 2020Article
- Healthcare access and services use among US children with autism spectrum disorder.Autism : the international journal of research and practice · 2019Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
objectiveTo determine associations of unmet needs for child or family health services with (1) adverse family financial and employment impacts and (2) child behavioral functioning problems among US children with autism spectrum disorder (ASD), developmental delay (DD), and/or intellectual disability (ID).
methodThis was a secondary analysis of parent-reported data from the 2009 to 2010 National Survey of Children with Special Health Care Needs linked to the 2011 Survey of Pathways to Diagnosis and Services. The study sample (n = 3,518) represented an estimated 1,803,112 US children aged 6 to 17 years with current ASD, DD, and/or ID (developmental disabilities). Dependent variables included adverse family financial and employment impacts, as well as child behavioral functioning problems. The independent variables of interest were unmet need for (1) child health services and (2) family health services. Multivariable logistic regression models were fit to examine associations.
resultsUnmet need for child and family health services, adverse family financial and employment impacts, and child behavioral functioning problems were prevalent among US children with developmental disabilities. Unmet needs were associated with an increased likelihood of adverse family employment and financial impacts. Unmet needs were associated with an increased likelihood of child behavioral functioning problems the following year; however, this association was not statistically significant.
conclusionUnmet needs are associated with adverse impacts for children with developmental disabilities and their families. Increased access to and coordination of needed health services following ASD, DD, and/or ID diagnosis may improve outcomes for children with developmental disabilities and their families.
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Registered trials
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