ArticleThe Journal of adolescent health : official publication of the Society for Adolescent Medicine2017
Pilot of the Chronic Disease Self-Management Program for Adolescents and Young Adults With Sickle Cell Disease.
Article in The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 43 citations in OpenAlex.
- Self-management interventions for children and young people with sickle cell disease: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Digital cognitive behavioral therapy vs education for pain in adults with sickle cell disease.Blood advances · 2024Trial
- Executive Functioning and Self-Management Processes Mediate the Relationship Between Insomnia and Pain-Related Disability.The journal of pain · 2024Trial
- Improving self-management in adolescents with sickle cell disease.Pediatric blood & cancer · 2020Trial
- Self-Management Interventions in Young Adults (18-30 Years) With Type 1 Diabetes, Sickle Cell Disease, and Inflammatory Bowel Disease: A Scoping Review.Chronic diseases and translational medicine · 2026Review
- Health self-management programs for adolescents and young adults with chronic medical condition transitioning from pediatric to adult care: a scoping review.European journal of pediatrics · 2025Article
- Informing the Design of Individualized Self-Management Regimens from the Human, Data, and Machine Learning Perspectives.ACM transactions on computer-human interaction : a publication of the Association for Computing Machinery · 2025Article
- Determinants of life satisfaction in adolescents with congenital or acquired heart disease: a nationwide cross-sectional study.BMC public health · 2024Article
- Evaluating the feasibility of delivering a pain management programme for adults living with sickle cell disease.British journal of pain · 2024Article
- Feasibility of Electronic Medication Monitoring Among Adolescents and Emerging Adults with Sickle Cell Disease.Patient preference and adherence · 2023Article
- Mobile health use predicts self-efficacy and self-management in adolescents with sickle cell disease.Translational behavioral medicine · 2021Article
- A scoping review of transition interventions for young adults with sickle cell disease.Pediatric blood & cancer · 2021Article
- Understanding barriers to transition from pediatric to adult care among young adults with sickle cell disease to develop a transition mentor program.Clinical practice in pediatric psychology · 2021Article
- The Teen Symposium: Engaging Adolescents and Young Adults with Sickle Cell Disease in Clinical Care and Research.Clinical practice in pediatric psychology · 2020Article
- Disease Self-Efficacy and Health-Related Quality of Life in Adolescents With Sickle Cell Disease.Journal of pediatric hematology/oncology · 2020Article
- Article
- End points for sickle cell disease clinical trials: patient-reported outcomes, pain, and the brain.Blood advances · 2019Article
- A program of transition to adult care for sickle cell disease.Hematology. American Society of Hematology. Education Program · 2019Review
- Self-Management Strategies for Coping with Adverse Symptoms in Persons Living with HIV with HIV Associated Non-AIDS Conditions.AIDS and behavior · 2018Article
- Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & PractitionersArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
purposeThis study evaluated the feasibility of a group self-management intervention, the well-established Stanford Chronic Disease Self-Management Program (CDSMP), for adolescents and young adults (AYA) with sickle cell disease (SCD).
methodsA total of 22 AYA participants with SCD, ages 16-24 years, completed self-efficacy and quality of life measures before the CDSMP, after, and 3 and 6 months later.
resultsThis AYA cohort showed significant improvements in self-efficacy (primary outcome) after the intervention. Analyses of follow-up data revealed a medium effect of the CDSMP on patient activation 3 months post although this was not sustained. Participants were highly satisfied, but only 64% completed the program.
conclusionsThis study demonstrates that the CDSMP is acceptable and has the ability to improve self-efficacy. Additional research is needed to determine feasibility and evaluate health outcomes for AYA with SCD.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.