ArticleJournal of clinical and diagnostic research : JCDR2016
What Should Constitute a Health Related Quality of Life Scale for Parkinson's Disease?
Article in Journal of clinical and diagnostic research : JCDR, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- Defining Quality of Life: The Perspective of People Living with Parkinson's Disease.Movement disorders clinical practice · 2026Article
- Development and Validation of Quality of Life in Parkinson's Disease Instrument.Annals of Indian Academy of NeurologyArticle
- Enhancing Quality of Life in Indian Parkinson's Disease Patients with Improved Measurement of Psychological Domains: A Perspective.Annals of Indian Academy of NeurologyArticle
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Authors and funding
7 authors.
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Abstract
introductionHealth Related Quality of Life (HRQoL) in Parkinson's Disease (PD) lacks universally agreed definition and its components. A conceptual framework helps in understanding the essential domains and their inter-relationship while developing patient reported outcome measure.
aimTo construct a conceptual framework for developing HRQoL scale in PD. MATERIALS AND
methodsA panel of 7 experts extracted 6 major domains for measuring HRQoL in PD from literature review including 8 disease specific scales for PD, 2 books on quality of life, 5 websites, relevant articles; and content analysis of semi-structured interviews of stakeholders (28 persons with PD, 6 caregivers and 9 clinicians). Extracted domains were subjected to consensus of stakeholders (7 persons with PD, 7 caregivers and 7 clinicians) on 7 point Likert scale. The panel constructed a conceptual framework and a definition of HRQoL in PD in context of available guidelines for developing patient reported outcome measures.
resultsThe extracted domains were physical, non motor symptom, psychological, family/social, finance and treatment domains. Median of all six domains on 7 point Likert scale was 7 and inter-quartile distance was <1 in consensus agreement. The conceptual framework consisted of indicator domains and causal domains. Indicator domains (physical, psychological, and social and family) estimate the influence of causal domains (motor symptoms, non motor symptoms, finance and treatment) on quality of life. The definition emphasizes upon the person's perception of their symptoms and its impact on their lives.
conclusionThis study defined and developed a conceptual framework for HRQoL scale for PD.
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