SynthesisBMC medical ethics2016
Seeking consent for research with indigenous communities: a systematic review.
Synthesis in BMC medical ethics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Potential research ethics violations against an indigenous tribe in Ecuador: a mixed methods approach.BMC medical ethics · 2020Pooled it
- Where to Next for Māori Health Research Review Processes? Insights Into the Indigenous Context: An Integrative Systematic Literature Review.Journal of the Royal Society of New Zealand · 2026Review
- Barriers to Accessing Vascular Surgery in Northern, Rural, and Remote Canadian Communities.CJC open · 2026Review
- Employing Common Morality to Address Ethical Issues in Genetics Research With Indigenous People: The Ọmọlúàbí Ideology.American journal of biological anthropology · 2026Review
- Indigenous pregnancy: Agency and strength of Batwa women challenging colonialism and gender inequity.PLOS global public health · 2026Article
- Sharing Back, Listening Forward: Participatory Dissemination in a Tribal Community.Journal of participatory research methods · 2026Article
- Clinical Trial Ethical Challenges in Low- and Middle-Income Countries: A Review of Systematic Review.Research square · 2025Article
- Between rhetoric and reality: dignified health care for the Soliga adivasi community in Chamarajanagar district, Karnataka, India.International journal for equity in health · 2025Article
- Informed consent processes with First Nations peoples undergoing surgery or invasive procedures: a scoping review.BMC medical ethics · 2025Article
- Article
- Aboriginal Community Controlled Organisations Leading the Way in Child Health Research.Journal of community health · 2025Article
- Decolonisation and Self-Regulation as Alternative Paths to Data Science Health Research Governance in Africa.Wellcome open research · 2025Article
- Neuropharmacological Interventions of Plant Origin for Parkinson's Disease: A Comprehensive Appraisal.Current neuropharmacology · 2025Review
- Verbal consent in biomedical research: moving toward a future standard practice?Frontiers in genetics · 2025Review
- Culturally appropriate consent processes for community-driven indigenous child health research: a scoping review.BMC medical ethics · 2024Article
- The 2024International journal of exercise science · 2024Article
- Indigenous gender and wellness: a scoping review of Canadian research.International journal of circumpolar health · 2023Article
- Actionable Solutions to Achieve Health Equity in Chronic Liver Disease.Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association · 2023Review
- An emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventions.Systematic reviews · 2023Article
- Community engagement strategies to promote recruitment and participation in clinical research among rural communities: A narrative review.Journal of clinical and translational science · 2023Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWhen conducting research with Indigenous populations consent should be sought from both individual participants and the local community. We aimed to search and summarise the literature about methods for seeking consent for research with Indigenous populations.
methodsA systematic literature search was conducted for articles that describe or evaluate the process of seeking informed consent for research with Indigenous participants. Guidelines for ethical research and for seeking consent with Indigenous people are also included in our review.
resultsOf 1447 articles found 1391 were excluded (duplicates, irrelevant, not in English); 56 were relevant and included. Articles were categorised into original research that evaluated the consent process (n = 5) or publications detailing the process of seeking consent (n = 13) and guidelines for ethical research (n = 38). Guidelines were categorised into international (n = 8); national (n = 20) and state/regional/local guidelines (n = 10). In five studies based in Australia, Canada and The United States of America the consent process with Indigenous people was objectively evaluated. In 13 other studies interpreters, voice recording, videos, pictures, flipcharts and "plain language" forms were used to assist in seeking consent but these processes were not evaluated. Some Indigenous organisations provide examples of community-designed resources for seeking consent and describe methods of community engagement, but none are evaluated. International, national and local ethical guidelines stress the importance of upholding Indigenous values but fail to specify methods for engaging communities or obtaining individual consent. In the 'Grey literature' concerns about the consent process are identified but no solutions are offered.
conclusionConsultation with Indigenous communities is needed to determine how consent should be sought from the community and the individual, and how to evaluate this process.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.