ArticlePediatric rheumatology online journal2016
"Sometimes I feel like a pharmacist": identity and medication use among adolescents with juvenile arthritis.
Article in Pediatric rheumatology online journal, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 16 citations in OpenAlex.
- Improvement of medication adherence in adolescents and young adults with SLE using web-based education with and without a social media intervention, a pilot study.Pediatric rheumatology online journal · 2018Trial
- A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments.The Cochrane database of systematic reviews · 2023Review
- What is QOL in children and adolescents with physical disabilities? A thematic synthesis of pediatric QOL literature.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Review
- Medication management in the context of mental illness: an exploratory study of young people living in Australia.BMC public health · 2020Article
- Article
- Untimely illness: When diagnosis does not match age-related expectations.Health expectations : an international journal of public participation in health care and health policy · 2018Article
- Impact of systemic juvenile idiopathic arthritis/Still's disease on adolescents as evidenced through social media posts.Open access rheumatology : research and reviews · 2018Article
- The Role of Medication in Supporting Emotional Wellbeing in Young People with Long-Term Needs.Healthcare (Basel, Switzerland) · 2017Article
Corrections and comments
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Authors and funding
6 authors at 5 institutions in 1 country.
Funding
Abstract
backgroundTaking medicines as intended is difficult for everybody, but young people going through adolescence have greater problems than adults and younger children. One of the most important things that happen during the teenage years is the development of individual identities, which might not remain constant during this time and can be affected deeply by the diagnosis of a long-term condition. The aim of this study was to examine the relationships between identity and medication use among young people with juvenile arthritis.
methodsA prospective qualitative study was undertaken to collect private online 'blog' style data from young people (aged 11-19 years) with juvenile arthritis, and their parents, to examine their views about their condition, identity, medication and use of health services. Participants were identified from a large paediatric hospital in the UK.
resultsYoung people (n = 21) with a median age 14 years (range 11-17 years) posted a median (range) of 8 (1-36) blogs and parents (n = 6) posted 4 (1-12) blogs. Young people gave a strong sense of both private and public identity that was intertwined with their arthritis and treatment. It was evident that young people's self-care was intrinsically linked to their attempts to maintain a sense of individually and socially constructed definitions of normality. The act of taking medication, and the consequences (positive or negative) of that act, had an impact both personally and socially.
conclusionsYoung people with juvenile arthritis reflect on their medication as a factor affecting their perception of themselves. Acknowledging the roles of both personal and social identity will be important in any strategies to support optimal medication use. This includes an understanding of the identity transformations that young people can experience and how decision-making may be affected by their attempts to retain pre-diagnosis identities and/or develop new social identities.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.