ArticleBMC palliative care2016
Using linked administrative and disease-specific databases to study end-of-life care on a population level.
Article in BMC palliative care, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
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Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A Comprehensive Systematic Review of Data Linkage Publications on Diabetes in Australia.Frontiers in public health · 2022Pooled it
- Effectiveness and Safety of Oral Anticoagulants in Older Patients With Atrial Fibrillation: A Systematic Review and Meta-Analysis.Frontiers in pharmacology · 2020Pooled it
- What gets measured in palliative care? A review and synthesis of routine data collection in 16 countries.Health policy OPEN · 2025Review
- Palliative care in acute care surgery: research challenges and opportunities.Trauma surgery & acute care open · 2025Review
- Pre-exposure prophylaxis (PrEP) use trajectories and incidence of HIV and other sexually transmitted infections among PrEP users in Belgium: a cohort analysis of insurance claims data from 2017 to 2019.BMC public health · 2024Article
- Quality of palliative and end-of-life care: a qualitative study of experts' recommendations to improve indicators in Quebec (Canada).BMC palliative care · 2024Article
- Multimorbidity healthcare expenditure in Belgium: a 4-year analysis (COMORB study).Health research policy and systems · 2024Article
- Linking health survey data with health insurance data: methodology, challenges, opportunities and recommendations for public health research. An experience from the HISlink project in Belgium.Archives of public health = Archives belges de sante publique · 2023Article
- Social inequalities and long-term health impact of COVID-19 in Belgium: protocol of the HELICON population data linkage.BMJ open · 2023Article
- Comparing the risk of dementia in subjects with atrial fibrillation using non-vitamin K antagonist oral anticoagulants versus vitamin K antagonists: a Belgian nationwide cohort study.Age and ageing · 2023Article
- Article
- Development and operationalization of a data framework to assess quality of integrated diabetes care in the fragmented data landscape of Belgium.BMC health services research · 2022Article
- Researching two Compassionate Cities: study protocol for a mixed-methods process and outcome evaluation.Palliative care and social practice · 2022Article
- Adherence and persistence to oral anticoagulants in patients with atrial fibrillation: A Belgian nationwide cohort study.Frontiers in cardiovascular medicine · 2022Article
- Generating key practice points that enable optimal palliative care in acute hospitals: Results from the OPAL project's mid-point meta-inference.International journal of nursing studies advances · 2021Article
- Review
- Using administrative health data for palliative and end of life care research in Ireland: potential and challenges.HRB open research · 2021Article
- Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research.Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2020Article
- Real-life effectiveness of omalizumab in difficult-to-treatERJ open research · 2019Article
- Discontinuation of medications at the end of life: A population study in Belgium, based on linked administrative databases.British journal of clinical pharmacology · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe use of full-population databases is under-explored to study the use, quality and costs of end-of-life care. Using the case of Belgium, we explored: (1) which full-population databases provide valid information about end-of-life care, (2) what procedures are there to use these databases, and (3) what is needed to integrate separate databases.
methodsTechnical and privacy-related aspects of linking and accessing Belgian administrative databases and disease registries were assessed in cooperation with the database administrators and privacy commission bodies. For all relevant databases, we followed procedures in cooperation with database administrators to link the databases and to access the data.
resultsWe identified several databases as fitting for end-of-life care research in Belgium: the InterMutualistic Agency's national registry of health care claims data, the Belgian Cancer Registry including data on incidence of cancer, and databases administrated by Statistics Belgium including data from the death certificate database, the socio-economic survey and fiscal data. To obtain access to the data, approval was required from all database administrators, supervisory bodies and two separate national privacy bodies. Two Trusted Third Parties linked the databases via a deterministic matching procedure using multiple encrypted social security numbers.
conclusionIn this article we describe how various routinely collected population-level databases and disease registries can be accessed and linked to study patterns in the use, quality and costs of end-of-life care in the full population and in specific diagnostic groups.
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