ArticleBMC health services research2016
Using a complex adaptive system lens to understand family caregiving experiences navigating the stroke rehabilitation system.
Article in BMC health services research, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed.
- Holding it all together: Family caregivers' support needs after very early supported discharge post stroke.PloS one · 2026Article
- What are the Mechanisms and Contexts for a Supported Life After Stroke Pathway: Protocol for a Rapid Realist Review.HRB open research · 2025Article
- Platform-Based Patient-Clinician Digital Health Interventions for Care Transitions: Scoping Review.Journal of medical Internet research · 2024Article
- Translation and Validation of the Functional Assessment of Chronic Illness Therapy-Palliative Care (Facit-Pal-14) Scale.Journal of caring sciences · 2024Article
- A Qualitative Exploration of Stroke Survivors' Experiences of Using a Stroke Helpline.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Improving caregiver preparedness in the care transition of stroke patients: a scoping review.Journal of medicine and life · 2023Article
- Platform-Based Patient-Clinician Digital Health Interventions for Care Transitions: Protocol for a Scoping Review.JMIR research protocols · 2023Article
- Application of complexity theory in health and social care research: a scoping review.BMJ open · 2023Article
- Social support score in patients with malignant diseases-with sociodemographic and medical characteristics.Frontiers in psychology · 2023Article
- Protocol for a scoping review of patient-clinician digital health interventions for the population with hip fracture.BMJ open · 2022Article
- Evaluating the impact of a training program to support transitioning from the hospital to the community for people after stroke: a community case study.BMC health services research · 2022Article
- Factors associated with social support for family members who care for stroke survivors.AIMS public health · 2022Article
- Putting the Patient First: A Scoping Review of Patient Desires in Canada.Healthcare policy = Politiques de sante · 2021Article
- Analysing a Chinese Regional Integrated Healthcare Organisation Reform Failure using a Complex Adaptive System Approach.International journal of integrated care · 2017Article
- The role of caregivers in interfacility care transitions: a qualitative study.Patient preference and adherence · 2017Article
- Health-Related Quality of Life and Social Support of Elderly Lung and Gastrointestinal Cancer Patients Undergoing Chemotherapy.SAGE open nursingArticle
- Validity and Reliability of Persian Version of Multidimensional Scale of Perceived Social Support in Iranian Cancer Patients.SAGE open nursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily caregivers provide the stroke survivor with social support and continuity during the transition home from a rehabilitation facility. In this exploratory study we examined family caregivers' perceptions and experiences navigating the stroke rehabilitation system. The theories of continuity of care and complex adaptive systems were integrated to examine the transition from a stroke rehabilitation facility to the patient's home. This study provides an understanding of the interacting complexities at the macro and micro levels.
methodsA convenient sample of family caregivers (n = 14) who provide care for a stroke survivor were recruited 4-12 weeks following the patient's discharge from a stroke rehabilitation facility in Ontario, Canada. Interviews were conducted with family caregivers to examine their perceptions and experiences navigating the stroke rehabilitation system. Directed and inductive content analysis and the theory of Complex Adaptive Systems were used to interpret the perceptions of family caregivers.
resultsHealth system policies and procedures at the macro-level determined the types and timing of information being provided to caregivers, and impacted continuity of care and access to supports and services at the micro-level. Supports and services in the community, such as outpatient physiotherapy services, were limited or did not meet the specific needs of the stroke survivors or family caregivers.
conclusionRelationships with health providers, informational support, and continuity in case management all influence the family caregiving experience and ultimately the quality of care for the stroke survivor, during the transition home from a rehabilitation facility.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.