Evidence map›Paper›PMID 27709734›Full record

Trial reportHealth expectations : an international journal of public participation in health care and health policy2017

What factors influence successful recruitment of siblings of individuals with first episode psychosis to e-health interventions? A qualitative study.

Jacqueline Sin, Claire Henderson, Debbie Spain, Catherine Gamble, Ian Norman

Open access · goldAbstract readRandomized Controlled Trial
In one paragraph

Trial report in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.8field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 7 citations in OpenAlex.

  1. Trial
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Jacqueline SinHealth Service & Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
Claire HendersonHealth Service & Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
Debbie SpainMRC Social, Genetic and Developmental Psychiatry Centre, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
Catherine GambleSouth West London & St George's Mental Health NHS Trust, London, UK.
Ian NormanFlorence Nightingale Faculty of Nursing & Midwifery, King's College London, London, UK.
King's College London · GBSouth West London and St George's Mental Health NHS Trust · GB

Funding

Department of Health DRF-2011-04-129Department of Health PDF-2015-08-035
6 · The paper itself

Abstract

backgroundRecruitment to clinical research studies can prove complex. This is particularly true of mental health research, given factors such as confidentiality, capacity and consent, or when attempting to recruit family members as opposed to service users themselves.

aimThis study investigated the challenges experienced and strategies employed in the recruitment of siblings of people with first episode psychosis using Early Intervention in Psychosis Services (EIPS) in England.

methodsAs part of a randomized controlled trial (RCT) of an e-health intervention for siblings, we conducted a process evaluation study whereby semistructured interview was undertaken with clinical and research staff involved in recruitment of siblings. Data were analysed thematically.

resultsTwelve participants from six EIPS were interviewed. Data analysis revealed seven key themes: (i) limited comprehensive family data available; (ii) data governance and consent issues; (iii) organizational factors; (iv) convoluted recruitment methods; (v) concerns about service users' opinions; (vi) fluidity in siblings' needs and expectations; and (vii) strategies to enhance recruitment.

conclusionsRecruitment challenges identified in this study concerned administrative, organizational, process and attitudinal issues. These are similar to other studies recruiting mental health service users as well as family members. Failure to recruit to target implies that studies are underpowered to detect potential statistically or clinically meaningful changes. Future studies should establish how best to enhance family inclusiveness in clinical practice and research.

Indexed as

Patient SelectionPsychotic DisordersEnglandHumansInterviews as TopicMental Health ServicesQualitative ResearchSiblingsTelemedicinebrothers and sisters/siblingse-health interventionsfamilies/family carerspsychosistrial recruitment

Identifiers

PMID27709734
PMCPMC5513011
OpenAlexW2473737908

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.