SynthesisBMJ open2016
Experiences of long-term life-limiting conditions among patients and carers: what can we learn from a meta-review of systematic reviews of qualitative studies of chronic heart failure, chronic obstructive pulmonary disease and chronic kidney disease?
Synthesis in BMJ open, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 48 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
48 citing papers in PubMed, 5 syntheses or guidelines pooled it, 99 citations in OpenAlex.
- Existential suffering in the day to day lives of those living with palliative care needs arising from chronic obstructive pulmonary disease (COPD): A systematic integrative literature review.Palliative medicine · 2022Pooled it
- Do chronic heart failure symptoms interact with burden of treatment? Qualitative literature systematic review.BMJ open · 2021Pooled it
- Pooled it
- Work of being an adult patient with chronic kidney disease: a systematic review of qualitative studies.BMJ open · 2018Pooled it
- Using Normalization Process Theory in feasibility studies and process evaluations of complex healthcare interventions: a systematic review.Implementation science : IS · 2018Pooled it
- Mechanisms of Engagement With Mobile Health Apps for Adults With Long-Term Conditions: Overview of Systematic Reviews.JMIR mHealth and uHealth · 2026Review
- Reframing kidney care: toward whole person, integrative, and minimally disruptive healthcare delivery.BMC nephrology · 2026Article
- Translational framework for implementation evaluation and research: a critical approach to patient-centred equity design.Implementation science communications · 2025Article
- Dimensions of Social Capital for Supporting Informal Carers of Patients With Advanced Chronic Illness in the Community: A Concept Mapping Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Perceptions of Patient-Clinician Communication Among Adults With and Without Serious Illness.JAMA network open · 2025Article
- Lived Experiences of Patients Hospitalized With Acute Decompensated Heart Failure and Kidney Dysfunction.JAMA network open · 2025Article
- Managing the work of living with heart failure: a qualitative study using the cumulative complexity model from Southeastern Minnesota.BMJ open · 2024Article
- Gaining consensus on emotional wellbeing themes and preferences for digital intervention type and content to support the mental health of young people with long-term health conditions: A Delphi study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- From illness management to quality of life: rethinking consumer health informatics opportunities for progressive, potentially fatal illnesses.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Addressing Barriers to Chronic Obstructive Pulmonary Disease (COPD) Care: Three Innovative Evidence-Based Approaches: A Review.International journal of chronic obstructive pulmonary disease · 2024Review
- Exploring the workload of informal caregiving in the context of HIV/NCD multimorbidity in South Africa.PLOS global public health · 2024Article
- Rewriting the heart failure pillars toward less burdensome heart failure care pathways.The British journal of cardiology · 2024Article
- Burden, depression and anxiety effects on family caregivers of patients with chronic kidney disease in Greece: a comparative study between dialysis modalities and kidney transplantation.International urology and nephrology · 2023Article
- Associations Between Self-Management Behaviors and Psychological Resilience in Patients With COPD.Respiratory care · 2023Article
- EXPERTS II - How are patient and caregiver participation in health and social care shaped by experienced burden of treatment and social inequalities? Protocol for a qualitative synthesis.NIHR open research · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 5 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo summarise and synthesise published qualitative studies to characterise factors that shape patient and caregiver experiences of chronic heart failure (CHF), chronic obstructive pulmonary disease (COPD) and chronic kidney disease (CKD).
designMeta-review of qualitative systematic reviews and metasyntheses. Papers analysed using content analysis. DATA SOURCES: CINAHL, EMBASE, MEDLINE, PsychINFO, Scopus and Web of Science were searched from January 2000 to April 2015. ELIGIBILITY CRITERIA FOR SELECTING STUDIES: Systematic reviews and qualitative metasyntheses where the participants were patients, caregivers and which described experiences of care for CHF, COPD and CKD in primary and secondary care who were aged ≥18 years.
resultsSearches identified 5420 articles, 53 of which met inclusion criteria. Reviews showed that patients' and caregivers' help seeking and decision-making were shaped by their degree of structural advantage (socioeconomic status, spatial location, health service quality); their degree of interactional advantage (cognitive advantage, affective state and interaction quality) and their degree of structural resilience (adaptation to adversity, competence in managing care and caregiver response to demands).
conclusionsTo the best of our knowledge, this is the first synthesis of qualitative systematic reviews in the field. An important outcome of this overview is an emphasis on what patients and caregivers value and on attributes of healthcare systems, relationships and practices that affect the distressing effects and consequences of pathophysiological deterioration in CHF, COPD and CKD. Interventions that seek to empower individual patients may have limited effectiveness for those who are most affected by the combined weight of structural, relational and practical disadvantage identified in this overview. We identify potential targets for interventions that could address these disadvantages. SYSTEMATIC REVIEW REGISTRATION NUMBER: PROSPERO CRD42014014547.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.