ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017
Oral health-related quality of life in youth receiving cleft-related surgery: self-report and proxy ratings.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed, 45 citations in OpenAlex.
- Proxy- and Patient-Reported Outcome Measures in Cleft Lip and/or Palate Under 8 Years of Age: A Scoping Review.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026Article
- The Impact of Child Life Intervention on Psychological Status and Quality of Life in Children With Cleft Lip and Palate.The Journal of craniofacial surgery · 2026Article
- Evaluation of the Health-Related Quality of Life in Non-Syndromic Persian Toddlers with Orofacial Clefts Undergoing Team Care and Compared with a Control Group.Iranian journal of child neurology · 2025Article
- Impact of Multidisciplinary Cleft Team Care on Oral Health Quality of Life in Children With Unilateral Cleft Lip and Palate: A Focus on Early Intervention vs. Sporadic Treatment.International journal of dentistry · 2025Article
- Efficacy of modified anterior maxillary segmental distraction osteogenesis based on 3D visualisation for the treatment of maxillary hypoplasia among adolescents with cleft lip and palate.BMC oral health · 2024Article
- Finnish Translation and Linguistic Validation of the CLEFT-Q Questionnaire.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2024Article
- The Impact of COVID-19 on Parental Perception of Oral Health-Related Quality of Life of Children: A Comparison of a Sample from Saudi Arabia and Kuwait.International journal of dentistry · 2023Article
- Influence of Cleft Lip and Palate on Oral Health-Related Quality of Life in Northern Italy: Exploring Both the Children's and Caregivers' Perspectives.Children (Basel, Switzerland) · 2022Article
- Follow-Up Care Barriers for Patients with Orofacial Clefts.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2022Article
- Perception of quality of life by children and adolescents with cleft lip/palate after orthodontic and surgical treatment: gender and age analysis.Progress in orthodontics · 2021Article
- Oral health-related quality of life among young adults with cleft in northern Finland.Clinical and experimental dental research · 2020Article
- Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2018Article
- Quality of life, work ability, and facial deformities.Revista brasileira de medicina do trabalho : publicacao oficial da Associacao Nacional de Medicina do Trabalho-ANAMT · 2018Article
- Quality-of-Life in Children with Orofacial Clefts and Caregiver Well-being.Journal of dental research · 2017Review
- Challenges in conducting multicentre, multidisciplinary, longitudinal studies in children with chronic conditions.Community dentistry and oral epidemiology · 2017Article
- Management of rare diseases of the Head, Neck and Teeth: results of a French population-based prospective 8-year study.Orphanet journal of rare diseases · 2017Article
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
purposeThis paper evaluated the impact of cleft-related surgery on the oral health-related quality of life (OHRQoL) of youth with cleft over time.
methodsData were derived from a 5-year, multi-center, prospective, longitudinal study of 1196 youth with cleft lip and/or palate and their caregivers. Eligible youth were between 7.5 and 18.5 years old, spoke English or Spanish, and were non-syndromic. During each observational period, which included baseline, and 1- and 2-year post-baseline follow-up visits, youths and their caregivers completed the Child Oral Health Impact Profile, a validated measure of OHRQoL. Multilevel mixed-effects models were used to analyze the effects of receipt of craniofacial surgery on OHRQoL over time.
resultsDuring the course of this study a total of 516 patients (43 %) received at least one surgery. Youth in the surgery recommendation group had lower self- (β = -2.18, p < 0.05) and proxy-rated (β = -2.92, p < 0.02) OHRQoL when compared to non-surgical self- and proxy-rated OHRQoL at baseline. Both surgical and non-surgical youth (β = 3.73, p < 0.001) and caregiver (β = 1.91, p < 0.05) ratings of OHRQoL improved over time. There was significant incremental improvement (time × surgery interaction) in self-reported OHRQoL for youth postsurgery (β = 1.04, p < 0.05), but this postsurgery increment was not seen in the caregiver proxy ratings.
conclusionsSurgical intervention impacts OHRQoL among youth with cleft. Youth who were surgical candidates had lower baseline self- and caregiver-rated OHRQoL when compared to non-surgical youth. Youth who underwent cleft-related surgery had significant incremental improvements in self-rated but not caregiver (proxy)-rated OHRQoL after surgery.
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