Evidence map›Paper›PMID 27689233›Full record

ArticleSocial psychiatry and psychiatric epidemiology2016

An interpretative phenomenological analysis (IPA) of coercion towards community dwelling older adults with dementia: findings from Mysore studies of natal effects on ageing and health (MYNAH).

Vijay Danivas, Mufaddal Bharmal, Paul Keenan, Steven Jones, Samuel Christaprasad Karat, Kumaran Kalyanaraman, Martin Prince, Caroline H D Fall, Murali Krishna

Erratum issuedOpen access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Social psychiatry and psychiatric epidemiology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
1.2field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 22 citations in OpenAlex.

  1. Review
  2. Article
  3. Relational Solidarity and Conflicting Ethics in Dementia Care in Urban India.The journals of gerontology. Series B, Psychological sciences and social sciences · 2024
    Article
  4. Article
  5. Article
  6. The caregiving phenomenon and caregiver participation in dementia.Scandinavian journal of caring sciences · 2019
    Review
  7. Review
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 2 countries.

Vijay DanivasFoundation for Research Advocacy in Mental Health (FRAMe), Mysore, India. vijaydanivas@gmail.com.
Mufaddal BharmalMedical School, University of Southampton, Southampton, UK.
Paul KeenanEdge Hill University, Lancashire, UK.
Steven JonesEdge Hill University, Lancashire, UK.
Samuel Christaprasad KaratCSI Holdsworth Memorial Hospital, Mysore, India.
Kumaran KalyanaramanCSI Holdsworth Memorial Hospital, Mysore, India.
Martin PrincePsychiatric Epidemiology, Institute of Psychiatry, London, UK.
Caroline H D FallInternational Pediatric Epidemiology, MRC Lifecourse Epidemiology Unit, University of Southampton, Southampton, UK.
Murali KrishnaWellcome DBT India Alliance at Epidemiology Research Unit, CSI Holdsworth Memorial Hospital, Mysore, India.
CSI Holdsworth Memorial Hospital · INEdge Hill University · GBUniversity of Southampton · GBFoundation for Research in Community Health · INPsychiatry Research Trust · GB

Funding

Medical Research CouncilWellcome Trust-DBT India Alliance
6 · The paper itself

Abstract

purposeLimited availability of specialist services places a considerable burden on caregivers of Persons with Dementia (PwD) in Low- and Middle-Income Countries (LMICs). There are limited qualitative data on coercive behavior towards PwD in an LMIC setting.

aimThe aim of this study was to find relevant themes of the lived experience of relatives as caregivers for PwD in view of their use of coercive measures in community setting in South India.

methodPrimary caregivers (n = 13) of PwDs from the Mysore study of Natal effects on Ageing and Health (MYNAH) in South India were interviewed to explore the nature and impact of coercion towards community dwelling older adults with dementia. The narrative data were coded using an Interpretative Phenomenological Analysis (IPA) approach for thematic analysis and theory formation.

resultsCaregivers reported feeling physical and emotional burn-out, a lack of respite care, an absence of shared caregiving arrangements, limited knowledge of dementia, and a complete lack of community support services. They reported restrictions on their lives through not being able take employment, a poor social life, reduced income and job opportunities, and restricted movement that impacted on their physical and emotional well-being. Inappropriate use of sedatives, seclusion and environmental restraint, and restricted dietary intake, access to finances and participation in social events, was commonly reported methods of coercion used by caregivers towards PwD. Reasons given by caregivers for employing these coercive measures included safeguarding of the PwD and for the management of behavioral problems and physical health.

conclusionThere is an urgent need for training health and social care professionals to better understand the use of coercive measures and their impact on persons with dementia in India. It is feasible to conduct qualitative research using IPA in South India.

Indexed as

CoercionAgedAged, 80 and overAnimalsCaregiversDementiaFemaleHumansIndependent LivingIndiaMaleMiddle AgedCaregivingCoercionDementiaInterpretative phenomenological analysisLow- and middle-income settingNarrative methods

Identifiers

PMID27689233
PMCPMC5131085
OpenAlexW2524669511

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.