ArticleTranslational behavioral medicine2016
Engaging research participants to inform the ethical conduct of mobile imaging, pervasive sensing, and location tracking research.
Article in Translational behavioral medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 43 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
43 citing papers in PubMed.
- Investigating Awareness and Acceptance of Digital Phenotyping in Dhaka's Korail Slum: Qualitative Study.JMIR formative research · 2025Article
- A Method for Enabling Digital Health Technologies in Clinical and Translational Research at an Academic Medical Center.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2025Article
- Caregiver and Youth Characteristics That Influence Trust in Digital Health Platforms in Pediatric Care: Mixed Methods Study.Journal of medical Internet research · 2024Article
- Considerations for the Design of Informed Consent in Digital Health Research: Participant Perspectives.Journal of empirical research on human research ethics : JERHRE · 2024Article
- Evaluating Users' Experiences of a Child Multimodal Wearable Device: Mixed Methods Approach.JMIR human factors · 2024Article
- Multifaceted Role of Social Media in Healthcare: Opportunities, Challenges, and the Need for Quality Control.Cureus · 2023Review
- Capturing children food exposure using wearable cameras and deep learning.PLOS digital health · 2023Article
- Patient Perspectives and Preferences for Consent in the Digital Health Context: State-of-the-art Literature Review.Journal of medical Internet research · 2023Review
- Automated wearable cameras for improving recall of diet and time use in Uganda: a cross-sectional feasibility study.Nutrition journal · 2023Article
- Wearables in Schizophrenia: Update on Current and Future Clinical Applications.JMIR mHealth and uHealth · 2022Review
- Perspective: Opportunities and Challenges of Technology Tools in Dietary and Activity Assessment: Bridging Stakeholder Viewpoints.Advances in nutrition (Bethesda, Md.) · 2022Article
- Optimizing Ethics Engagement in Research: Learning from the Ethical Complexities of Studying Opioid Use in Pregnancy.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2022Article
- Using Wearable Cameras to Investigate Health-Related Daily Life Experiences: A Literature Review of Precautions and Risks in Empirical Studies.Research ethics · 2022Article
- Article
- Association of number of bites and eating speed with energy intake: Wearable technology results under free-living conditions.Appetite · 2021Article
- Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey.Journal of medical Internet research · 2021Article
- Ethics review of big data research: What should stay and what should be reformed?BMC medical ethics · 2021Review
- Determining the Intellectual Structure and Academic Trends of Smart Home Health Care Research: Coword and Topic Analyses.Journal of medical Internet research · 2021Review
- Ethical and Safety Concerns Regarding the Use of Mental Health-Related Apps in Counseling: Considerations for Counselors.Journal of technology in behavioral science · 2021Article
- Applying Environmental Context to Rehabilitation Research Using Geographic Information Systems and Global Positioning Systems Geospatial Technologies.Rehabilitation research, policy, and education · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
Researchers utilize mobile imaging, pervasive sensing, social media, and location tracking (MISST) technologies to observe and intervene with participants in their natural environment. The use of MISST methods and tools introduces unique ethical issues due to the type and quantity of data, and produces raising new challenges around informed consent, risk assessment, and data management. Since MISST methods are relatively new in behavioral research, there is little documented evidence to guide institutional review board (IRB) risk assessment and inform appropriate risk management strategies. This study was conducted to contribute the participant perspectives when considering ethical and responsible practices. Participants (n = 82) enrolled in an observational study where they wore several MISST devices for 1 week completed an exit survey. Survey items focused on the following: 1-device comfort, 2-informed consent, 3-privacy protections, and 4-bystander engagement. The informed consent process reflected participant actual experience. Device comfort and privacy were raised as concerns to both the participants and bystanders. While the majority of the participants reported a positive experience, it is important to note that the participants were volunteers who were not mandated to wear tracking devices and that persons who are mandated may not have a similar response. Findings support strategies proposed in the Kelly et al. (2013) ethical framework, which emphasizes procedures to improve informed consent, protect privacy, manage data, and respect bystander rights when using a wearable camera.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.