ArticleCancer2017
Clinical presentation and outcomes for adult ependymoma patients.
Article in Cancer, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03251989 (Exploring Outcomes and Risk in Patients With Rare Central Nervous System Tumors), which is not on this map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Exploring Outcomes and Risk in Patients With Rare Central Nervous System Tumors
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.
- Patient-reported outcomes in Primary Spinal Intradural Tumours: a systematic review.Spinal cord · 2024Pooled it
- Natural history study of adults with primary central nervous system tumors: Initial results for first 1000 participants.Neuro-oncology practice · 2026Article
- Adult ependymoma: results from the Dutch Brain Tumour Registry on primary treatment and survival.Journal of neuro-oncology · 2025Article
- Evaluating Clinical and Sociodemographic Risk for Symptom Burden Associated Interference With Daily Functioning in the Primary Brain Tumor Patient Population.Cancer medicine · 2025Observational
- The COVID-19 pandemic experience for patients with central nervous system tumors: Differences in patient-reported outcomes and practice recommendations.Neuro-oncology practice · 2025Article
- Article
- An opportunity for fertility preservation in neurosurgical spinal ependymoma patients: a single center review.Frontiers in reproductive health · 2025Article
- Transcriptomic and epigenetic dissection of spinal ependymoma (SP-EPN) identifies clinically relevant subtypes enriched for tumors with and without NF2 mutation.Acta neuropathologica · 2024Article
- Identification of health-related quality of life profiles among long-term survivors of primary central nervous system tumors.Journal of neuro-oncology · 2023Article
- Ependymomas in Children and Adults.Advances in experimental medicine and biology · 2023Article
- Extraventricular site indicates higher grade but better prognosis in adult supratentorial ependymomas: a 14-year single-center retrospective cohort.Neurosurgical review · 2022Article
- Quality of life and return to work and sports after spinal ependymoma resection.Scientific reports · 2022Article
- Quality of life reporting in the management of posterior fossa tumours: A systematic review.Frontiers in surgery · 2022Review
- Clinical trial challenges, design considerations, and outcome measures in rare CNS tumors.Neuro-oncology · 2021Article
- Bilateral Lumbar Radiculopathy Secondary to Myxopapillary Ependymoma: A Case Report.Journal of chiropractic medicine · 2021Article
- Short-term outcome following surgery for rare brain tumor entities in adults: a Swedish nation-wide registry-based study and comparison with SEER database.Journal of neuro-oncology · 2020Article
- MRI Features of Intracranial Anaplastic Ependymomas: A Comparison of Supratentorial and Infratentorial Lesions.Frontiers in oncology · 2020Article
- EANO guidelines for the diagnosis and treatment of ependymal tumors.Neuro-oncology · 2018Review
- Recent Advances in the Classification and Treatment of Ependymomas.Current treatment options in oncology · 2017Review
- Superficial Siderosis Due to Spinal Myxopapillary Ependymoma Mimicking Idiopathic Intracranial Hypertension.Annals of Indian Academy of NeurologyArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundOutcomes projects can be a catalyst for determining disease- and treatment-related consequences for patients with rare tumors. The Adult Ependymoma Outcomes (AEO) survey uses self-reported experience to evaluate how this tumor affects patient groups throughout the illness trajectory.
methodsPatients completed the AEO survey via a Web-based portal. The survey included questions on treatment, tumor recurrence, and current health status; the MD Anderson Symptom Inventory Brain Tumor and Spine Tumor modules; and the Medical Outcomes Study 36-Item Short Form Health Survey (SF-36).
resultsThe sample included 264 participants (57% female) with a median age of 46 years (range, 18-77 years). Radiation treatment was commonly used for patients who had brain involvement (χ
conclusionsThese results demonstrate the feasibility of implementing outcomes projects that report on the clinical and demographic characteristics of a rare patient population, and they underscore the importance of outcomes data in understanding disease-related issues. Cancer 2017;123:494-501. © 2016 American Cancer Society.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.