ArticleAIDS research and treatment2016
Perceptions and Experiences about Self-Disclosure of HIV Status among Adolescents with Perinatal Acquired HIV in Poor-Resourced Communities in South Africa.
Article in AIDS research and treatment, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
30 citing papers in PubMed, 2 syntheses or guidelines pooled it, 45 citations in OpenAlex.
- Examining the Relationship Between HIV-Related Stigma and the Health and Wellbeing of Children and Adolescents Living with HIV: A Systematic Review.AIDS and behavior · 2023Pooled it
- Risky behaviours and their correlates among adolescents living with HIV in sub-Saharan Africa: a systematic review.Reproductive health · 2018Pooled it
- "I believe in my ancestors, and I participate and believe:" negotiating identity, tradition, and HIV-related health among SGM communities in the Eastern Cape.SSM. Qualitative research in health · 2026Article
- Needs Assessment to Inform a Life Course-Based Support Programme for Adolescents with Perinatally Acquired HIV in Rural Limpopo, South Africa.International journal of environmental research and public health · 2026Article
- Psychosocial support and HIV-related stigma intervention needs of adolescents living with HIV in southern Ethiopia: insights from adolescents, caregivers, and healthcare providers.Global health action · 2025Article
- Article
- Disclosure and Experiences of HIV-Related Stigma among Adolescents and Young Adults Living with HIV in South Africa.AIDS and behavior · 2024Article
- Provider assisted partner notification utilization and associated factors among adolescents living with HIV in Uganda, a cross-sectional study.BMC pediatrics · 2024Article
- Mental Health Problems Across the HIV Care Continuum for Adolescents Living with HIV in Sub-Saharan Africa: A Scoping Review.AIDS and behavior · 2023Article
- Community Perceptions of HIV Stigma, Discriminatory Attitudes, and Disclosure Concerns: A Health Facility-Based Study in Selected Health Districts of South Africa.International journal of environmental research and public health · 2023Article
- Growing Up with HIV: Experiences of Transition from Adolescence to Adulthood at Selected Primary Health Facilities in Limpopo Province, South Africa.Children (Basel, Switzerland) · 2023Article
- Article
- "We can tell a good teacher who cares, understands, and can be confidential about it": youth and caregiver experiences with HIV disclosure to schools in Kenya.Frontiers in public health · 2023Article
- Adolescent experiences, perceptions, and preferences for the process of HIV status disclosure in Kenya.Frontiers in public health · 2023Article
- "The Peer Educator Is the Game-Changer of My Life": Perceptions of Adolescents Living with HIV in DR Congo on Involving Peer Educators in the Process of HIV Disclosure.Children (Basel, Switzerland) · 2022Article
- "I can live a normal life": Exploring adherence to antiretroviral therapy in Indonesian adolescents living with HIV.Belitung nursing journal · 2022Article
- Association of experienced and internalized stigma with self-disclosure of HIV status by youth living with HIV.AIDS and behavior · 2021Article
- Adolescent human immunodeficiency virus self-management: Needs of adolescents in the Eastern Cape.African journal of primary health care & family medicine · 2021Article
- Living With a Stigmatized Identity; Perceptions of Disclosure, Coping, and Medication Adherence Among Adolescent Boys and Young Men in Chiredzi-Zimbabwe.Frontiers in public health · 2021Article
- Attendance of psychosocial teen clubs and self-reported antiretroviral medication adherence: a cross section study of adolescents with perinatal HIV in the Kingdom of Lesotho.AIMS public health · 2021Article
Corrections and comments
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Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background. There is limited research on the disclosure experiences of adolescents with perinatal acquired HIV (PAH). The study explores how adolescents with PAH experience living with HIV and examined their perceptions and experiences regarding disclosure and onward self-disclosure to friends and sexual partners. Methods. Thematic analysis was used to analyze in-depth interviews conducted with 37 adolescents. Findings. Adolescents received disclosure about their status at mean age of 12 years. They perceived disclosure as necessary and appreciated the truthful communication they received. Adolescents have learned to accept and live with HIV, and they desired to be healthy and normal like other people. After receiving disclosure, they found their treatment meaningful, and they adhered to medication. However, they also expressed a strong message that their HIV status was truly their secret and that self-disclosure to others will take the feeling of being normal away from them because they will be treated differently. Conclusion. Adolescents maintained secrecy in order to be accepted by their peers but also to protect themselves from stigma and isolation. Given that adolescents want to be informed of their HIV status but desire controlling self-disclosure of their HIV status, these should form the basis for development of disclosure interventions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.