Evidence map›Paper›PMID 27671919›Full record

ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2018

Improving Access to Standardized Fertility Preservation Information for Older Adolescents and Young Adults with Cancer: Using a User-Centered Approach with Young Adult Patients, Survivors, and Partners to Refine Fertility Knowledge Transfer.

Seline Tam, Natasha Puri, Derek Stephens, Laura Mitchell, Meredith Giuliani, Janet Papadakos, Abha A Gupta

Abstract read
PubMed Publisher
In one paragraph

Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. The effects of an educational program for non-physician health care providers regarding fertility preservation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018
    Trial
  2. Article
  3. Article
  4. Review
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Review
  12. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Seline TamPrincess Margaret Cancer Centre, Adolescent and Young Adult Program, Schulich School of Medicine and Dentistry, University of Western Ontario, London, ON, Canada.
Natasha PuriPrincess Margaret Cancer Centre, Adolescent and Young Adult Program, College of Arts & Science, New York University, New York, NY, USA.
Derek StephensHospital for Sick Children, Biostatistics, Design & Analytics, Department of Public Health Sciences, University of Toronto, Toronto, ON, Canada.
Laura MitchellPrincess Margaret Cancer Centre, Adolescent and Young Adult Program, Lawrence S Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada.
Meredith GiulianiRadiation Medicine Program, Princess Margaret Cancer Centre, & Department of Radiation Oncology, University of Toronto, Toronto, ON, Canada.
Janet PapadakosPrincess Margaret Cancer Centre, Oncology Patient and Family Education, Toronto, ON, Canada.
Abha A GuptaPrincess Margaret Cancer Centre, Division of Medical Oncology, University of Toronto, Toronto, ON, Canada. abha.gupta@sickkids.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Adolescent and young adult (AYA) cancer patients under 40 should be made aware of their fertility risks and preservation options throughout their care. However, discussions on fertility preservation (FP) do not routinely occur. With a dearth of FP resources, oncology providers may lack knowledge around FP. Thus, informational needs can be unmet, leading to anxiety and distress in patients. Provision of pertinent and timely information can help patients cope better with their diagnosis. FP pamphlets were developed for men and women with cancer. A cross-sectional in-house survey, using convenience sampling, evaluated the pamphlets' effectiveness and measured ease of understanding, acceptability, and perceived utility. Patients and partners were also asked to provide recommendations and complete the Short Test of Functional Health Literacy in Adults (S-TOFHLA) measuring health literacy level. This helps determine if health literacy influences perception of pamphlet effectiveness. All participants (n = 56) reviewed both pamphlets. Fifty-four participants (96 %) found the pamphlet for men useful, while 29 participants (52 %) improved their male fertility knowledge. The pamphlet for women was useful for 52 participants (93 %) and improved knowledge in 35 (63 %) of them. Although the majority of participants had adequate health literacy (98 %), there was insufficient sample diversity to determine if health literacy influenced the pamphlet's effectiveness. Participants indicated preference in receiving verbal (73 %) and written (66 %) information over watching videos or in-class education. They recommended including fertility clinics, financial resources, and statistics in the brochures. These FP pamphlets were concluded as effective in supporting patients in making FP decisions.

Indexed as

Health Knowledge, Attitudes, PracticePamphletsSurvivorsAdolescentAdultComprehensionCross-Sectional StudiesDecision MakingFemaleFertility PreservationHealth LiteracyHumansLiteracyMaleMedical OncologyMiddle AgedAdolescent and young adultsCancerFertilityFertility risksHealth literacyPatient educationPatient resourcesPreservationPreservation optionsSupportive care

Identifiers

PMID27671919

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.