ArticleJournal of racial and ethnic health disparities2017
If We Would Only Ask: How Henrietta Lacks Continues to Teach Us About Perceptions of Research and Genetic Research Among African Americans Today.
Article in Journal of racial and ethnic health disparities, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 33 citations in OpenAlex.
- Black community member perceptions and ethics recommendations on epigenomic research.Clinical epigenetics · 2025Article
- A cross-sectional survey of clinical trials knowledge, participation, and perspectives in an underserved community of Washington, DC.Archives of dermatological research · 2024Article
- Reaching Communities Through Food Allergy Advocacy, Research, and Education: A Comprehensive Analysis.The journal of allergy and clinical immunology. In practice · 2024Article
- Representation of ethnic and racial minority groups in European vaccine trials: a quantitative analysis of clinical trials registries.BMJ public health · 2023Article
- Committing to genomic answers for all kids: Evaluating inequity in genomic research enrollment.Genetics in medicine : official journal of the American College of Medical Genetics · 2023Article
- Vaccinomics: A scoping review.Vaccine · 2023Article
- Promoting Inclusive Recruitment: a Qualitative Study of Black Adults' Decision to Participate in Genetic Research.Journal of urban health : bulletin of the New York Academy of Medicine · 2022Article
- The Genomics of Colorectal Cancer in Populations with African and European Ancestry.Cancer discovery · 2022Article
- Learning from Black/African American Participants: Applying the Integrated Behavioral Model to Assess Recruitment Strategies for a Glaucoma Genetic Study.Health communication · 2022Article
- Community Engagement Practices at Research Centers in U.S. Minority Institutions: Priority Populations and Innovative Approaches to Advancing Health Disparities Research.International journal of environmental research and public health · 2021Article
- Impact of dedicated women's outreach workers (WOWs) on recruitment of women in ACTG clinical studies.HIV research & clinical practice · 2021Article
- Community Stakeholders' Perspectives on Introducing Human Papillomavirus Vaccination and Biobanking Evidence-Based Programs Within Medically Underserved Communities: A Community-Engaged Approach.International quarterly of community health education · 2021Article
- Metabolomic Markers of Southern Dietary Patterns in the Jackson Heart Study.Molecular nutrition & food research · 2021Article
- Attitudes and experiences regarding genetic research among persons of African descent.Journal of community genetics · 2020Article
- Why African Americans say "No": A Study of Pharmacogenomic Research Participation.Ethnicity & disease · 2020Article
- Understanding Participation in Genetic Research Among Patients With Multiple Sclerosis: The Influences of Ethnicity, Gender, Education, and Age.Frontiers in genetics · 2020Article
- A Review of African Americans' Beliefs and Attitudes About Genomic Studies: Opportunities for Message Design.Frontiers in genetics · 2019Review
- Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas.Clinical and translational science · 2018Article
- Post-GWAS in Psychiatric Genetics: A Developmental Perspective on the "Other" Next Steps.Genes, brain, and behavior · 2018Review
- From Principles to Practice: Real-World Patient and Stakeholder Engagement in Breast Cancer Research.The Permanente journal · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundAfrican Americans are under-represented in research, and there are perceptions of unwillingness among African Americans to participate in research. We explored barriers to African American research participation.
methodsWe conducted a cross-sectional survey to explore knowledge and beliefs regarding medical and genetic research among adults (n = 169) at urban community events. Descriptive data were summarized by frequencies for survey responses.
resultsOnly 13 % of respondents had ever been approached for research; 93 % of those who had been approached for research had participated. Eighty-six percent of those who had previous research experience indicated willingness to participate again vs. only 30 % among those with no research experience. Seventy-four percent had altruistic views of research; 28 % were concerned about truthfulness of researchers; 52 % feared incidental discoveries.
conclusionAfrican Americans have favorable views of research; however, few are being engaged in studies. Effective interventions to address identified barriers may improve participation and lead to better health outcomes among African Americans.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.