ArticleThe patient2017
Engaging Patient Advocates and Other Stakeholders to Design Measures of Patient-Centered Communication in Cancer Care.
Article in The patient, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Current trends in patient and public involvement in cancer research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- How does integrated knowledge translation work? A realist review.Health research policy and systems · 2025Review
- Meaningfulness, feasibility, and usability of quality-of-care measures for maternal and infant health: A structured mixed-methods review.Journal of clinical and translational science · 2025Article
- Psychometrics of a Persian patient-centered care scale for chronic diseases.Journal of education and health promotion · 2025Article
- An international study of clinical, demographic, and competence-related determinants of communication with professionals.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Patient and public involvement in cancer research: A scoping review.Cancer medicine · 2023Article
- Patient advocates' views of patient roles in interprofessional collaborative practice in primary care: A constructivist grounded theory study.Health & social care in the community · 2022Article
- Emergency Room Nurses' Experiences in Person-Centred Care.Nursing reports (Pavia, Italy) · 2022Article
- The quality of patient-nurse communication perceived before and during the COVID-19 pandemic: an Italian pilot study.Acta bio-medica : Atenei Parmensis · 2021Article
- Communication Skills and Professional Practice: Does It Increase Self-Efficacy in Nurses?Frontiers in psychology · 2020Article
- Article
- "Insight into who you are as a human being": Perceptions of the Utility and Usability of a Values Assessment Tool (VAsT) for Women With Metastatic Breast Cancer.Cancer control : journal of the Moffitt Cancer CenterArticle
- The Effects of Patient-Centered Communication on Patient Engagement, Health-Related Quality of Life, Service Quality Perception and Patient Satisfaction in Patients with Cancer: A Cross-Sectional Study in Türkiye.Cancer control : journal of the Moffitt Cancer CenterArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient-centered communication (PCC) is an essential component of patient-centered care and contributes to patient satisfaction, health-related quality of life, and other important patient outcomes.
objectiveThe aim of this study was to develop and test survey questions to assess patients' experiences with PCC in cancer care.
methodsWe used a conceptual model developed by the National Cancer Institute as our framework. The survey questions align with the six core functions of PCC defined in the model: Exchanging Information, Managing Uncertainty, Enabling Patient Self-Management, Fostering Healing Relationships, Making Decisions, and Responding to Emotions. The study focused on colorectal cancer patients. We conducted two rounds of cognitive interviewing to evaluate patients' ability to understand and provide valid answers to the PCC questions. Interviews were conducted in Maryland and North Carolina in 2014. We involved a patient advocacy group, Fight Colorectal Cancer, and a multidisciplinary panel of stakeholders throughout the measurement development process to ensure that the survey questions capture aspects of PCC that are important to patients and meet the needs of potential end users, including researchers, healthcare organizations, and health professionals.
resultsPatient and other stakeholder input informed revisions of draft survey questions, including changes to survey instructions, frame of reference for questions, response scales, and language.
conclusionThis study demonstrated the feasibility and value of engaging patients and other stakeholders in a measurement development study. The Patient-Centered Outcomes Research Institute (PCORI) conceptual model of patient-centered outcomes research provides a useful guide for patient engagement in research. Research funders should call for meaningful roles for patients and other stakeholders in health research, including in the development of patient-centered outcomes.
Indexed as
Identifiers
27658673What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.