Evidence map›Paper›PMID 27654498›Full record

ArticleJournal of bioethical inquiry2016

Participation of Children in Medical Decision-Making: Challenges and Potential Solutions.

Vida Jeremic, Karine Sénécal, Pascal Borry, Davit Chokoshvili, Danya F Vears

Abstract read
PubMed Publisher
In one paragraph

Article in Journal of bioethical inquiry, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  12. Including the voice of paediatric patients: Cocreation of an engagement game.Health expectations : an international journal of public participation in health care and health policy · 2022
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  14. Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Vida JeremicSchool of Medicine of University of Belgrade, Dr Subotica 8, Belgrade, 11000, Serbia. vidajeremic@yahoo.com.
Karine SénécalCentre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, 740, avenue Dr. Penfield, #5202, Montreal, Quebec, Canada, H3A 0G1.
Pascal BorryCentre for Biomedical Ethics and Law, Department of Public Health and Primary Care Faculty of Medicine, Leuven University, Kapucijnenvoer 35, Box 7001, 3000, Leuven, Belgium.
Davit ChokoshviliCentre for Biomedical Ethics and Law, Department of Public Health and Primary Care Faculty of Medicine, Leuven University, Kapucijnenvoer 35, Box 7001, 3000, Leuven, Belgium.
Danya F VearsCentre for Biomedical Ethics and Law, Department of Public Health and Primary Care Faculty of Medicine, Leuven University, Kapucijnenvoer 35, Box 7001, 3000, Leuven, Belgium.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Participation in healthcare decision-making is considered to be an important right of minors, and is highlighted in both international legislation and public policies. However, despite the legal recognition of children's rights to participation, and also the benefits that children experience by their involvement, there is evidence that legislation is not always translated into healthcare practice. There are a number of factors that may impact on the ability of the child to be involved in decisions regarding their medical care. Some of these factors relate to the child, including their capacity to be actively involved in these decisions. Others relate to the family situation, sociocultural context, or the underlying beliefs and practices of the healthcare provider involved. In spite of these challenges to including children in decisions regarding their clinical care, we argue that it is an important factor in their treatment. The extent to which children should participate in this process should be determined on a case-by-case basis, taking all of the potential barriers into account.

Indexed as

Decision MakingInformed ConsentPatient ParticipationPediatricsPersonal AutonomyChildChild AdvocacyHumansAdolescentChildDecision-makingHealthcareParticipation

Identifiers

PMID27654498

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.