ArticleJournal of racial and ethnic health disparities2016
Discrepancies in Race and Ethnicity Documentation: a Potential Barrier in Identifying Racial and Ethnic Disparities.
Article in Journal of racial and ethnic health disparities, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 55 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
55 citing papers in PubMed, 6 syntheses or guidelines pooled it, 99 citations in OpenAlex.
- Skin color reporting in basal cell carcinoma-related randomized controlled trials in top dermatology journals: a systematic review.Archives of dermatological research · 2024Pooled it
- Race and Ethnicity of Infants Enrolled in Neonatal Clinical Trials: A Systematic Review.JAMA network open · 2023Pooled it
- How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review.BMC palliative care · 2023Pooled it
- Racial and Ethnic Disparities in Survival Among Patients With Hepatocellular Carcinoma in the United States: A Systematic Review and Meta-Analysis.Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association · 2022Pooled it
- The quality of social determinants data in the electronic health record: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2021Pooled it
- Residential Segregation and Racial Cancer Disparities: A Systematic Review.Journal of racial and ethnic health disparities · 2017Pooled it
- Sustained improvement in caregiver-reported infant demographic collection: a pilot towards equitable outcomes in the neonatal intensive care unit.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Race and Ethnicity Data in the Electronic Health Records: New Insights Through Comparison with American Community Survey Microdata.Journal of racial and ethnic health disparities · 2026Article
- A novel surname-based methodology to improve the disaggregation of Asian American ethnic subgroups in patients with ovarian cancer.Gynecologic oncology reports · 2026Article
- Statistical Accuracy of Administratively Recorded Race/Ethnicity in the Military Health System and Race/Ethnicity Ascertained via Questionnaire.Journal of racial and ethnic health disparities · 2026Article
- Evaluating the impact of discordant and missing demographic information on population health assessments using linked electronic health records and Census Bureau microdata.PLOS digital health · 2026Article
- Race, ethnicity and risk for colonisation and infection with key bacterial pathogens: a scoping review.BMJ global health · 2025Article
- Developing and Applying the BE-FAIR Equity Framework to a Population Health Predictive Model: A Retrospective Observational Cohort Study.Journal of general internal medicine · 2025Observational
- Evaluation of Reliability Between Race and Ethnicity Data Obtained from Self-report Versus Electronic Health Record.Journal of racial and ethnic health disparities · 2025Article
- Discrepancies in Aggregate Patient Data between Two Sources with Data Originating from the Same Electronic Health Record: A Case Study.Applied clinical informatics · 2025Article
- Contextualized race and ethnicity annotations for clinical text from MIMIC-III.Scientific data · 2024Article
- How to optimize and evaluate diversity in gynecologic cancer clinical trials: statements from the GCIG Barcelona Meeting.International journal of gynecological cancer : official journal of the International Gynecological Cancer Society · 2024Article
- Addressing Health Disparities in Hypertension: A Comprehensive Medical Elective and Survey Study Among Medical Students and Professionals.Medical science educator · 2024Article
- Anogenital HPV-Related Cancers in Women: Investigating Trends and Sociodemographic Risk Factors.Cancers · 2024Article
- Agreement of electronic health record-documented race and ethnicity with parental report.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
backgroundData collection on race and ethnicity is critical in the assessment of racial disparities related to health. Studies comparing clinical and administrative data show discrepancies in race documentation and attribution.
methodsSelf-reported data from two studies were compared to demographics in the electronic health record (EHR) extracted from the Biomedical Translational Research Information System (BTRIS) repository. McNemar and Bhapkar analyses were conducted to quantify the agreement of ethnicity and race between self-reported and EHR data. Pearson's chi-square tests were used to explore the relationship between acculturation, length of time in the USA, country of residence, and how individuals self-reported their race.
resultsThe sample (n = 280) was predominantly female (52.1 %), with a mean age of 47 (SD ± 13.74), mean years in the USA were 12.8 (SD ± 11.67) and the majority were born outside of the USA. (55.6 %). Those who self-identified as Hispanic (n = 208) scored a mean of 5.5 (SD ± 3.07) on the short acculturation scale (SAS) that ranges 4 to 20; lower scores indicate less acculturation. A significant difference was found between the way race is reported in the electronic medical record and self-reported data among those people who identified as Hispanic, with significant differences in the white (p < 0.0001) and other (p < 0.0001) categories.
conclusionsThe misclassification of race is most frequent in those individuals who self-identified as Hispanic. As the Hispanic population in the USA continues to grow, understanding the factors that affect the way that individuals from this heterogeneous population self-report race may provide important guidance in tailoring care to address health disparities.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.