ArticleBioethics2016
Meta Consent - A Flexible Solution to the Problem of Secondary Use of Health Data.
Article in Bioethics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
42 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Towards a Design Toolkit of Informed Consent Models Across Fields: A Systematic Review.Science and engineering ethics · 2022Pooled it
- Dynamic consent: a royal road to research consent?Journal of medical ethics · 2026Article
- Justice in the governance of personal health data spaces: stakeholder perspectives in Belgium.BMC medical ethics · 2026Article
- Not all information is equally important: informed consent to genetic testing for hereditary cancer.Journal of cancer research and clinical oncology · 2026Article
- Genomic testing in gamete donors: clinicians' perspectives on recontact and pre-donation genetic counseling.Journal of assisted reproduction and genetics · 2026Article
- The European Health Data Space and biobanking in Europe: synergies, tensions and the future governance of data-driven health research.Frontiers in genetics · 2026Review
- Critical consideration towards broad consent by patient experts: results of a semi-structured interview study on the secondary use of medical data.BMC medical ethics · 2025Article
- Should recipient parents have access to gamete donors' raw genomic data? Clinical, legal, and ethical considerations.Journal of assisted reproduction and genetics · 2025Article
- Augmenting research consent: should large language models (LLMs) be used for informed consent to clinical research?Research ethics · 2025Article
- Ethical decision-making for AI in mental health: the Integrated Ethical Approach for Computational Psychiatry (IEACP) framework.Psychological medicine · 2025Review
- Ensuring General Data Protection Regulation Compliance and Security in a Clinical Data Warehouse From a University Hospital: Implementation Study.JMIR medical informatics · 2025Article
- Enabling Demonstrated Consent for Biobanking with Blockchain and Generative AI.The American journal of bioethics : AJOB · 2025Article
- Participant Contributions to Person-Generated Health Data Research Using Mobile Devices: Scoping Review.Journal of medical Internet research · 2025Article
- Promoting Data Sharing: The Moral Obligations of Public Funding Agencies.Science and engineering ethics · 2024Article
- Waiving the consent requirement to mitigate bias in observational precision medicine research.International journal for equity in health · 2024Article
- Informed proxy consent for ancient DNA research.Communications biology · 2024Article
- [Nationally standardized broad consent in practice: initial experiences, current developments, and critical assessment].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2024Article
- [Legal regulation of digital public health interventions-hindrance or stimulus?]Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2024Review
- Navigating ethical challenges in psychological research involving digital remote technologies and people who use alcohol or drugs.The American psychologist · 2024Article
- Overcoming personal information protection challenges involving real-world data to support public health efforts in China.Frontiers in public health · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In this article we provide an in-depth description of a new model of informed consent called 'meta consent' and consider its practical implementation. We explore justifications for preferring meta consent over alternative models of consent as a solution to the problem of secondary use of health data for research. We finally argue that meta consent strikes an appropriate balance between enabling valuable research and protecting the individual.
Indexed as
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.