ArticlePatient related outcome measures2016
The Long-Term Conditions Questionnaire: conceptual framework and item development.
Article in Patient related outcome measures, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Measuring treatment burden related to general practice in patients with multimorbidity: development and validation of a PROM.Family medicine and community health · 2025Pooled it
- Comparison of a theoretically driven cognitive therapy (the Feeling Safe Programme) with befriending for the treatment of persistent persecutory delusions: a parallel, single-blind, randomised controlled trial.The lancet. Psychiatry · 2021Trial
- Health literacy, medication adherence, and quality-of-life scores in Jordanian adults with chronic diseases: a dual analytical study using the long-term conditions questionnaire and the EuroQol five-dimension three-level questionnaire.The Libyan journal of medicine · 2026Article
- Unraveling the pathway from treatment burden to holistic health status in older adults with complex multimorbidity: the mediating roles of stress adaptation and depressive symptoms.Frontiers in public health · 2026Article
- Evaluating health and social care integration in England's Pioneer programme: The challenges of undertaking research in service delivery and research regulatory systems that are not fit for purpose.Journal of health services research & policy · 2025Article
- Understanding data visualization techniques in qualitative studies used to develop and validate patient-reported outcome measures: a targeted literature review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Review
- Living well while providing support: validation of LTCQ-Carer for assessing informal carers' quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Article
- Development and testing of the reliability and validity of a Chinese version of the Long-Term Conditions Questionnaire.Zhejiang da xue xue bao. Yi xue ban = Journal of Zhejiang University. Medical sciences · 2023Article
- Use of the Long-Term Conditions Questionnaire (LTCQ) for monitoring health-related quality of life in people affected by cognitive impairment including dementia: pilot study in UK memory clinic services.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Quality of life following a lower limb reconstructive procedure: a protocol for the development of a conceptual framework.BMJ open · 2020Article
- Rasch analysis of the long-term conditions questionnaire (LTCQ) and development of a short-form (LTCQ-8).Health and quality of life outcomes · 2020Article
- Self-efficacy and health-related quality of life: a cross-sectional study of primary care patients with multi-morbidity.Health and quality of life outcomes · 2019Article
- Quality of life and burden of morbidity in primary care users with multimorbidity.Patient related outcome measures · 2018Article
- The context of coping: a qualitative exploration of underlying inequalities that influence health services support for people living with long-term conditions.Sociology of health & illness · 2018Article
- Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England.BMJ open · 2017Article
- Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion.Patient related outcome measures · 2016Article
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Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo identify the main issues of importance when living with long-term conditions to refine a conceptual framework for informing the item development of a patient-reported outcome measure for long-term conditions. MATERIALS AND
methodsSemi-structured qualitative interviews (n=48) were conducted with people living with at least one long-term condition. Participants were recruited through primary care. The interviews were transcribed verbatim and analyzed by thematic analysis. The analysis served to refine the conceptual framework, based on reviews of the literature and stakeholder consultations, for developing candidate items for a new measure for long-term conditions.
resultsThree main organizing concepts were identified: impact of long-term conditions, experience of services and support, and self-care. The findings helped to refine a conceptual framework, leading to the development of 23 items that represent issues of importance in long-term conditions. The 23 candidate items formed the first draft of the measure, currently named the Long-Term Conditions Questionnaire.
conclusionThe aim of this study was to refine the conceptual framework and develop items for a patient-reported outcome measure for long-term conditions, including single and multiple morbidities and physical and mental health conditions. Qualitative interviews identified the key themes for assessing outcomes in long-term conditions, and these underpinned the development of the initial draft of the measure. These initial items will undergo cognitive testing to refine the items prior to further validation in a survey.
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