Evidence map›Paper›PMID 27594054›Full record

Trial reportDisability and health journal2017

Bilingual approach to online cancer genetics education for Deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study.

Christina G S Palmer, Patrick Boudreault, Barbara A Berman, Alicia Wolfson, Lionel Duarte, Vickie L Venne, Janet S Sinsheimer

Abstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Disability and health journal, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Exploring the health literacy status of people with hearing impairment: a systematic review.Archives of public health = Archives belges de sante publique · 2023
    Pooled it
  2. Can Cancer Education Programs Improve Health Literacy Among Deaf and Hard of Hearing Patients: a Systematic Review.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023
    Pooled it
  3. Harnessing Digital Videos to Promote Cancer Prevention and Education: a Systematic Review of the Literature from 2013-2018.Journal of cancer education : the official journal of the American Association for Cancer Education · 2020
    Pooled it
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. A Bespoke Social Network for Deaf Women in Ecuador to Access Information on Sexual and Reproductive Health.International journal of environmental research and public health · 2019
    Article
  10. Review
  11. Genetic testing and eHealth usage among Deaf women.Journal of genetic counseling · 2019
    Article
  12. Article
  13. Improving Cancer Literacy for the Deaf Using Deaf-Tailored Educational Interventions: a Review of the Literature.Journal of cancer education : the official journal of the American Association for Cancer Education · 2018
    Review
  14. Article
  15. Article
  16. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Christina G S PalmerDepartment of Psychiatry & Biobehavioral Sciences, UCLA, USA; Department of Human Genetics, UCLA, USA; Institute for Society and Genetics, UCLA, USA. Electronic address: cpalmer@mednet.ucla.edu.
Patrick BoudreaultGallaudet University, Washington DC, USA.
Barbara A BermanDepartment of Health Policy and Management, Fielding School of Public Health, UCLA, USA.
Alicia WolfsonDepartment of Psychiatry & Biobehavioral Sciences, UCLA, USA.
Lionel DuarteDepartment of Psychiatry & Biobehavioral Sciences, UCLA, USA.
Vickie L VenneVeterans Health Administration, UT, USA.
Janet S SinsheimerDepartment of Human Genetics, UCLA, USA; Institute for Society and Genetics, UCLA, USA; Department of Biomathematics, UCLA, USA.

Funding

Cancer Genetics Education for the Deaf CommunityR25CA154290 · NCI · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI PALMER, CHRISTINA GERMAINE · 2011 to 2013
$819k
NCI NIH HHS R25 CA154290
6 · The paper itself

Abstract

introductionDeaf American Sign Language-users (ASL) have limited access to cancer genetics information they can readily understand, increasing risk for health disparities. We compared effectiveness of online cancer genetics information presented using a bilingual approach (ASL with English closed captioning) and a monolingual approach (English text). HYPOTHESIS: Bilingual modality would increase cancer genetics knowledge and confidence to create a family tree; education would interact with modality.

methodsWe used a parallel 2:1 randomized pre-post study design stratified on education. 150 Deaf ASL-users ≥18 years old with computer and internet access participated online; 100 (70 high, 30 low education) and 50 (35 high, 15 low education) were randomized to the bilingual and monolingual modalities. Modalities provide virtually identical content on creating a family tree, using the family tree to identify inherited cancer risk factors, understanding how cancer predisposition can be inherited, and the role of genetic counseling and testing for prevention or treatment. 25 true/false items assessed knowledge; a Likert scale item assessed confidence. Data were collected within 2 weeks before and after viewing the information.

resultsSignificant interaction of language modality, education, and change in knowledge scores was observed (p = .01). High education group increased knowledge regardless of modality (Bilingual: p < .001; d = .56; Monolingual: p < .001; d = 1.08). Low education group increased knowledge with bilingual (p < .001; d = .85), but not monolingual (p = .79; d = .08) modality. Bilingual modality yielded greater confidence creating a family tree (p = .03).

conclusionsBilingual approach provides a better opportunity for lower educated Deaf ASL-users to access cancer genetics information than a monolingual approach.

Indexed as

Health Knowledge, Attitudes, PracticeMultilingualismPersons with Hearing DisabilitiesSelf EfficacySign LanguageAccess to InformationAdultDeafnessEducational StatusFemaleGenetic Predisposition to DiseaseHealth EducationHumansInternetLanguageMaleDeafGenetic counselingHealth disparitiesHealth educationSign language

Identifiers

PMID27594054
PMCPMC5136526

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.