ArticleBMJ open2016
Exploring experiences of cancer care in Wales: a thematic analysis of free-text responses to the 2013 Wales Cancer Patient Experience Survey (WCPES).
Article in BMJ open, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
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Who cites it
20 citing papers in PubMed.
- Using Natural Language Processing to Explore Patient Perspectives on AI Avatars in Support Materials for Patients With Breast Cancer: Survey Study.Journal of medical Internet research · 2025Article
- Weakly supervised text classification on free-text comments in patient-reported outcome measures.Frontiers in digital health · 2025Article
- Information needs in breast reconstruction after mastectomy: a qualitative analysis of free-text responses from 2077 women.Breast cancer research and treatment · 2024Article
- Patient experience of bladder cancer: A data linkage study.BJUI compass · 2024Article
- "Provided a window on the world and lessened my feeling of isolation": older adults' perceived COVID-19 impact and technology use in Australia during recurrent lockdowns.BMC geriatrics · 2024Article
- Caring for older adults with cancer in Canada: Views from healthcare providers and cancer care allies in the community.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Patients' and families' opinions via suggestion boxes for improving hospital care for cancer patients: Analysis of 3419 cases over 11 years.Cancer reports (Hoboken, N.J.) · 2022Article
- Patients' cancer care perceptions conceptualized through the Cancer Experience Measurement Framework.BMC health services research · 2022Article
- Factors influencing cancer patients' experiences of care in the USA, United Kingdom, and Canada: A systematic review.EClinicalMedicine · 2022Review
- Exploring patient experiences of cancer care in Northern Ireland: A thematic analysis of free-text responses to the 2018 Northern Ireland Patient Experience Survey (NICPES).BMC health services research · 2021Article
- Computer-assisted textual analysis of free-text comments in the Swiss Cancer Patient Experiences (SCAPE) survey.BMC health services research · 2020Article
- How to automatically turn patient experience free-text responses into actionable insights: a natural language programming (NLP) approach.BMC medical informatics and decision making · 2020Article
- The patient experience of ambulatory cancer treatment: a descriptive study.Current oncology (Toronto, Ont.) · 2019Article
- Women's Free-text Comments on their Quality of Life: An Exploratory Analysis from the UK Standardisation of Breast Radiotherapy (START) Trials for Early Breast Cancer.Clinical oncology (Royal College of Radiologists (Great Britain)) · 2018Article
- Patients' perceptions of their experiences with nurse-patient communication in oncology settings: A focused ethnographic study.PloS one · 2018Article
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- Qualitative analysis of 6961 free-text comments from the first National Cancer Patient Experience Survey in Scotland.BMJ open · 2017Article
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- Exploring UK doctors' attitudes towards online patient feedback: Thematic analysis of survey data.Digital healthArticle
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo provide the first systematic analysis of a national (Wales) sample of free-text comments from patients with cancer, to determine emerging themes and insights regarding experiences of cancer care in Wales.
designThematic analysis of free-text data from a population-based survey. SETTING AND
participantsAdult patients with a confirmed cancer diagnosis treated within a 3-month period during 2012 in the 7 health boards and 1 trust providing cancer care in Wales.
main outcome measuresFree-text categorised by theme, coded as positive or negative, with ratios. Overarching themes are identified incorporating comment categories.
methods4672 respondents (of n=7352 survey respondents) provided free-text comments. Data were coded using a multistage approach: (1) coding of comments into general categories (eg, nursing, surgery, etc), (2) coding of subcategories within main categories (eg, nursing care, nursing communication, etc), (3) cross-sectional analysis to identify themes cutting across categories, (4) mapping of categories/subcategories to corresponding closed questions in the Wales Cancer Patient Experience Survey (WCPES) data for comparison.
resultsMost free-text respondents (82%, n 3818) provided positive comments about their cancer care, with 49% (n=2313) giving a negative comment (ratio 0.6:1, negative-to-positive). 3172 respondents (67.9% of free-text respondents) provided a comment mapping to 1 of 4 overarching themes: communication (n=1673, 35.8% free-text respondents, a ratio of 1.0:1); waiting during the treatment and/or post-treatment phase (n=923, 19.8%, ratio 1.5:1); staffing and resource levels (n=671, 14.4% ratio 5.3:1); speed and quality of diagnostic care (n=374, 8.0%, ratio 1.5:1). Within these areas, constituent subthemes are discussed.
conclusionsThis study presents specific areas of concern for patients with cancer, and reveals a number of themes present across the cancer journey. While the majority of comments were positive, analysis reveals concerns shared by significant numbers of respondents. Timely communication can help to manage these anxieties, even where delays or difficulties in treatment may be encountered.
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