Evidence map›Paper›PMID 27582169›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017

Value redefined for inflammatory bowel disease patients: a choice-based conjoint analysis of patients' preferences.

Welmoed K van Deen, Dominic Nguyen, Natalie E Duran, Ellen Kane, Martijn G H van Oijen, Daniel W Hommes

Open access · greenAbstract read
PubMed Publisher
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
8.8field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it, 20 citations in OpenAlex.

  1. Pooled it
  2. Treatment Priorities in Patients With a History of Laryngeal Cancer: A Conjoint Analysis.Otolaryngology--head and neck surgery : official journal of American Academy of Otolaryngology-Head and Neck Surgery · 2026
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  7. Article
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  9. Article
  10. Crohn's disease.Nature reviews. Disease primers · 2020
    Review
  11. UEG Week 2019 Poster Presentations.United European gastroenterology journal · 2019
    Article
  12. Article
  13. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 2 countries.

Welmoed K van DeenDivision of Digestive Diseases, Center for Inflammatory Bowel Diseases, David Geffen School of Medicine, University of California, Los Angeles, CA, USA. Welmoed.vanDeen@med.usc.edu.
Dominic NguyenDivision of Digestive Diseases, Center for Inflammatory Bowel Diseases, David Geffen School of Medicine, University of California, Los Angeles, CA, USA.
Natalie E DuranDivision of Digestive Diseases, Center for Inflammatory Bowel Diseases, David Geffen School of Medicine, University of California, Los Angeles, CA, USA.
Ellen KaneDivision of Digestive Diseases, Center for Inflammatory Bowel Diseases, David Geffen School of Medicine, University of California, Los Angeles, CA, USA.
Martijn G H van OijenDepartment of Medical Oncology, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.
Daniel W HommesDivision of Digestive Diseases, Center for Inflammatory Bowel Diseases, David Geffen School of Medicine, University of California, Los Angeles, CA, USA.
University of California, Los Angeles · USUniversity of Amsterdam · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeValue-based healthcare is an upcoming field. The core idea is to evaluate care based on achieved outcomes divided by the costs. Unfortunately, the optimal way to evaluate outcomes is ill-defined. In this study, we aim to develop a single, preference based, outcome metric, which can be used to quantify overall health value in inflammatory bowel disease (IBD).

methodsIBD patients filled out a choice-based conjoint (CBC) questionnaire in which patients chose preferable outcome scenarios with different levels of disease control (DC), quality of life (QoL), and productivity (Pr). A CBC analysis was performed to estimate the relative value of DC, QoL, and Pr. A patient-centered composite score was developed which was weighted based on the stated preferences.

resultsWe included 210 IBD patients. Large differences in stated preferences were observed. Increases from low to intermediate outcome levels were valued more than increases from intermediate to high outcome levels. Overall, QoL was more important to patients than DC or Pr. Individual outcome scores were calculated based on the stated preferences. This score was significantly different from a score not weighted based on patient preferences in patients with active disease.

conclusionsWe showed the feasibility of creating a single outcome metric in IBD which incorporates patients' values using a CBC. Because this metric changes significantly when weighted according to patients' values, we propose that success in healthcare should be measured accordingly.

Indexed as

AdultAgedAged, 80 and overChoice BehaviorCross-Sectional StudiesDelivery of Health CareFemaleHumansInflammatory Bowel DiseasesMaleMiddle AgedPatient PreferenceQuality of LifeSurveys and QuestionnairesInflammatory bowel diseasesOutcome measurementPatient preferencesValue-based health careValue equation

Identifiers

PMID27582169
OpenAlexW2509307460

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.