Evidence map›Paper›PMID 27582007›Full record

ArticleJournal of cancer survivorship : research and practice2017

Barriers to follow-up care among survivors of adolescent and young adult cancer.

Rochelle R Smits-Seemann, Sapna Kaul, Eduardo R Zamora, Yelena P Wu, Anne C Kirchhoff

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
49citing papers in PubMed, 2 pooled it
17.0field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

49 citing papers in PubMed, 2 syntheses or guidelines pooled it, 92 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
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  8. Observational
  9. Sociodemographic disparities and reasons for delayed healthcare among U.S. cancer survivors: an All of Us study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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  18. Factors influencing engagement in survivorship care among young adult survivors of hematologic malignancies: a mixed methods report.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Rochelle R Smits-SeemannDepartment of Pediatrics, Division of Pediatric Hematology/Oncology, University of Utah, Salt Lake City, UT, USA. Rochelle.smits@hci.utah.edu.
Sapna KaulDepartment of Preventive Medicine and Community Health, University of Texas Medical Branch, Galveston, TX, USA.
Eduardo R ZamoraUtah Department of Health, Salt Lake City, UT, USA.
Yelena P WuCancer Control and Population Sciences, Huntsman Cancer Institute, University of Utah, 2000 Circle of Hope, Rm 4124, Salt Lake City, UT, 84112, USA.
Anne C KirchhoffDepartment of Pediatrics, Division of Pediatric Hematology/Oncology, University of Utah, Salt Lake City, UT, USA.
University of Utah · USThe University of Texas Medical Branch at Galveston · USUtah Department of Health · US

Funding

UTAH REGIONAL CANCER CENTERP30CA042014 · NCI · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI CORNELIA M ULRICH · 1986 to 2026
$72.6M
Translational Approaches to Melanoma Prevention in Children at High Genetic RiskK07CA196985 · NCI · UNIVERSITY OF UTAH · PI WU, YELENA PING · 2015 to 2019
$682k
NCI NIH HHS K07 CA196985NCI NIH HHS P30 CA042014
6 · The paper itself

Abstract

purposeThough the need for risk-based follow-up care for survivors of adolescent and young adult (AYA) cancer has been documented, survivors often report forgoing recommended care due to cost. We sought to understand whether additional barriers to follow-up care exist for AYA survivors.

methodsWe recruited survivors who were diagnosed with cancer between the ages of 15 and 39 using the Utah Cancer Registry (UCR). Overall, 28 survivors participated in 6 focus groups held between March and May 2015 in Salt Lake City and St. George, UT. Focus group discussions focused on the reasons survivors may or may not attend recommended medical visits after completing therapy.

resultsSurvivors reported myriad barriers to follow-up medical visits, including lack of clear provider recommendation, fear of recurrent cancer diagnosis, wishing to move on with life, competing life responsibilities due to work and children, and not perceiving the need for a visit due to lack of symptoms.

conclusionsThough cost likely plays a major part in follow-up care adherence for survivors of AYA cancer, in our focus groups, participants indicated there were many other psychosocial and logistic barriers to care. Such factors play an important role in the day-to-day lives of survivors and are critical in medical decision-making. IMPLICATIONS FOR CANCER SURVIVORS: Several factors impede follow-up care adherence for survivors of AYA cancer that are amenable to interventions, including clearer provider recommendations, flexible appointment times, and childcare availability in clinics.

Indexed as

AdolescentAdultAftercareChildFemaleFocus GroupsHumansMaleNeoplasmsSurvivorsYoung AdultAYA cancerBarriers to careRisk-based follow-up careSurvivorship

Identifiers

PMID27582007
PMCPMC5526603
OpenAlexW2513446666

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.