Evidence map›Paper›PMID 27576341›Full record

ArticleBMC cancer2016

Validation of the flemish CARES, a quality of life and needs assessment tool for cancer care.

Bojoura Schouten, Johan Hellings, Elke Van Hoof, Patrick Vankrunkelsven, Paul Bulens, Frank Buntinx, Jeroen Mebis, Dominique Vandijck, Ward Schrooten

Registry-linked trialAbstract readValidation Study
In one paragraph

Article in BMC cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02282696 (Research on Psychosocial Aspects in the Care for Patients With Cancer), which is not on this map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02282696 nacompletednot on this map

Research on Psychosocial Aspects in the Care for Patients With Cancer: Validation Study CARES.

TypeinterventionalSponsorHasselt UniversityRan2013 to 2015Enrolled197ConditionsCancerArmsQuestionnaire, focus group participation
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. An explorative study on systematic assessment of QOL and care needs with the CARES-SF in the early follow-up of patients with digestive cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019
    Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Bojoura SchoutenFaculty of Medicine and Life Sciences, Hasselt University, Martelarenlaan 42, 3500, Hasselt, Belgium. bojoura.schouten@uhasselt.be.
Johan HellingsFaculty of Medicine and Life Sciences, Hasselt University, Martelarenlaan 42, 3500, Hasselt, Belgium.
Elke Van HoofDepartment of Experimental and Applied Psychology, Faculty of Psychological and Educational Sciences, Free University of Brussels, Pleinlaan 2, 1050, Elsene, Belgium.
Patrick VankrunkelsvenDepartment of Public health and Primary Care, Faculty of Medicine, KU Leuven, Kapucijnenvoer 33, PB 7001, 3000, Leuven, Belgium.
Paul BulensJessaziekenhuis, Stadsomvaart 11, 3500, Hasselt, Belgium.
Frank BuntinxDepartment of Public health and Primary Care, Faculty of Medicine, KU Leuven, Kapucijnenvoer 33, PB 7001, 3000, Leuven, Belgium.
Jeroen MebisFaculty of Medicine and Life Sciences, Hasselt University, Martelarenlaan 42, 3500, Hasselt, Belgium.
Dominique VandijckFaculty of Medicine and Life Sciences, Hasselt University, Martelarenlaan 42, 3500, Hasselt, Belgium.
Ward SchrootenFaculty of Medicine and Life Sciences, Hasselt University, Martelarenlaan 42, 3500, Hasselt, Belgium.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe Cancer Rehabilitation Evaluation System (CARES) is a quality of life (QOL) and needs assessment instrument of US origin that was developed in the 90's. Since November 2012 the copyright and user fee were abolished and the instrument became publicly available the present study aims to reinvestigate the psychometric properties of the CARES for the Flemish population in Belgium.

methodsThe CARES was translated into Flemish following a translation-back translation process. A sample of 192 cancer patients completed the CARES, concurrent measures, and questions on socio-demographic and medical data. Participants were asked to complete the CARES a second time 1 week later, followed by some questions on their experiences with the instrument. Internal consistency, test-retest reliability, content validity, construct validity, concurrent validity and feasibility of the CARES were subsequently assessed.

resultsThe Flemish CARES version demonstrated excellent reliability with high internal consistency (range .87-.96) and test-retest ratings (range .70-.91) for all summary scales. Factor analysis replicated the original factor solution of five higher order factors with factor loadings of .325-.851. Correlations with other instruments ranging from |.43|-|.75| confirmed concurrent validity. Feasibility was indicated by the low number of missing items (mean 2.3; SD 5.0) and positive feedback of participants on the instrument.

conclusionsThe Flemish CARES has strong psychometric properties and can as such be a valid tool to assess cancer patients' QOL and needs in research, for example in international comparisons. The positive feedback of participants on the CARES support the usefulness of this tool for systematic assessment of cancer patients' well-being and care needs in clinical practice.

trial registrationClinicalTrials.gov: NCT02282696 (July 16, 2014).

Indexed as

NeoplasmsPsychometricsQuality of LifeSurveys and QuestionnairesBelgiumHumansLanguageNeeds AssessmentCancerCARESNeeds assessmentPsycho-oncologyPsychosocialQuality of lifeValidation

Identifiers

PMID27576341
PMCPMC5006609

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.