ArticlePediatric blood & cancer2017
Development and evaluation of iManage: A self-management app co-designed by adolescents with sickle cell disease.
Article in Pediatric blood & cancer, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03429335 (Just TRAC It! Transitioning Responsibly to Adult Care Using Smart Phone Technology), which is not on this map. Cited by 68 papers, 5 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Just TRAC It! Transitioning Responsibly to Adult Care Using Smart Phone Technology
Who cites it
68 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Self-management interventions for children and young people with sickle cell disease: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Young peoples' involvement in welfare service development-Is voice enough?-A thematic synthesis of qualitative studies.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Generative Participatory Design Methodology to Develop Electronic Health Interventions: Systematic Literature Review.Journal of medical Internet research · 2020Pooled it
- Computer and mobile technology interventions to promote medication adherence and disease management in people with thalassemia.The Cochrane database of systematic reviews · 2019Pooled it
- Patient-Centered eHealth Interventions for Children, Adolescents, and Adults With Sickle Cell Disease: Systematic Review.Journal of medical Internet research · 2018Pooled it
- Community Health Worker and Mobile Health Interventions for Quality of Life Among Young Adults With Sickle Cell Disease: A Randomized Clinical Trial.JAMA network open · 2025Trial
- Digital cognitive behavioral therapy vs education for pain in adults with sickle cell disease.Blood advances · 2024Trial
- Comparing the effects of self- care education by lecture and smartphone application on self-efficacy of patients with thalassemia.BMC medical informatics and decision making · 2023Trial
- Feasibility of Medical Student Mentors to Improve Transition in Sickle Cell Disease.Journal of pediatric psychology · 2021Trial
- Improving self-management in adolescents with sickle cell disease.Pediatric blood & cancer · 2020Trial
- Identification of predictive factors for reversal of cerebral vasculopathy in an original longitudinal cohort study in newborns with sickle cell anaemia.British journal of haematology · 2026Article
- The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Coping Strategies and Social Support for Transition Readiness Among Youth With Sickle Cell Disease.JAMA network open · 2026Article
- Development of iGET Living, a Digital Graded Exposure Intervention for Youth With Chronic Pain: Multiphase User-Centered Design and Pilot Study.JMIR formative research · 2026Article
- AI-enabled Living Labs: Accelerating innovation in multiple sclerosis care and research.Multiple sclerosis (Houndmills, Basingstoke, England) · 2026Review
- Self-Management Interventions in Young Adults (18-30 Years) With Type 1 Diabetes, Sickle Cell Disease, and Inflammatory Bowel Disease: A Scoping Review.Chronic diseases and translational medicine · 2026Review
- Article
- The Community Health Workers and Mobile Health for Emerging Adults Transitioning Sickle Cell Disease Care (COMETS) Trial: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2025Article
- A Mobile Phone App to Support Self-Management and Transition to Adult Health Services in Young People With a Chronic Illness: Single-Arm Pilot Intervention Study.JMIR pediatrics and parenting · 2025Article
- Community-engaged research in psychological interventions for pediatric sickle cell disease: a scoping review.Journal of pediatric psychology · 2025Article
8 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundAdolescents and young adults (AYAs) with sickle cell disease (SCD) are a vulnerable population with high risk of morbidity that could be decreased with effective self-management. Previous research suggests that mobile applications (apps) may facilitate AYA engagement in health-promoting behaviors. The objectives of this study were: (i) describe Internet access and use in AYA with SCD; (ii) identify barriers for self-management in this population; (iii) collaborate with AYA to co-design a mobile app that would minimize barriers; and (iv) evaluate the feasibility and acceptability of the app. PROCEDURE: In phase 1, 46 AYAs with SCD 16-24 years of age completed a survey of Internet access and use. During phase 2, 19 AYAs with SCD (average age 20 ± 2.5 years) and eight healthcare providers participated in interviews to identify barriers and co-design sessions to develop the app. In phase 3, five AYAs with SCD completed app feasibility and usability testing.
resultsAYAs with SCD had daily Internet access (69%) using their computers (84%) or mobile phones (70%). Participants went online for health information (71%) and preferred Web sites with interactive/social features (83%). Barriers to self-management included failing to believe that their health would suffer, lack of tailored self-management support, lack of a mechanism to visualize self-management progress, and limited opportunities for peer interaction around self-management. The prototype app (iManage) was rated as highly feasible and beneficial.
conclusionsA mobile app prototype co-designed by AYAs with SCD may be a useful tool for engaging them in self-management strategies designed to improve health.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.