Evidence map›Paper›PMID 27571437›Full record

ArticleJournal of clinical nursing2017

Preferences and concerns for care needs in advanced Parkinson's disease: a qualitative study of couples.

Barbara Habermann, Ju Young Shin

Open access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of clinical nursing, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed, 6 pooled it
2.0field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 6 syntheses or guidelines pooled it, 38 citations in OpenAlex.

  1. Pooled it
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  3. Aspiration pneumonia in nursing literature-a mapping review.Frontiers in rehabilitation sciences · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors at 1 institution in 1 country.

Barbara HabermannSchool of Nursing, University of Delaware, Newark, DE, USA.
Ju Young ShinSchool of Nursing, University of Delaware, Newark, DE, USA.
University of Delaware · US

Funding

TRANSLATION RESEARCH ON CHRONIC DISEASE SELF-MANAGEMENTP30AG024967 · NIA · INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS · PI CALLAHAN, CHRISTOPHER M · 2004 to 2013
$3.2M
NIA NIH HHS P30 AG024967
6 · The paper itself

Abstract

AIMS AND

objectivesTo explore how couples with Parkinson's disease discuss their needs, concerns and preferences at the advanced stages of illness.

backgroundThe majority of care for people with Parkinson's disease is provided at home by family members. Parkinson's disease is characterised by a slow progressive decline with care needs often exceeding a decade.

designA descriptive qualitative study with 14 couples.

methodsData were collected on two occasions over a one-month period using semi-structured interviews, with both individual and couple interviews. Data were analysed thematically by the research team.

resultsAll participants discussed the strong desire to remain in their homes for as long as possible. For the people with Parkinson's disease, placement to long-term facilities was not an option to be considered. For spouses, there was an acknowledgement there may come a time when they could no longer continue to provide care. Concerns regarding falls, choking, voice production, financial strain and need for prognostic information from providers were influences on what they believed the future would hold and the decisions they would need to make.

conclusionsThe need for improved communication between providers and Parkinson's disease couples is evident. Interventions to support the couple in their discussions and decision-making regarding remaining in the home or not, and options to support advanced care needs are required. RELEVANCE TO CLINICAL PRACTICE: Nurses can help support decision-making by providing tangible information regarding the advanced stages of Parkinson's disease including adequate prognostic information.

Indexed as

Decision MakingFamily CharacteristicsAgedCaregiversCommunicationFamilyFemaleHumansInterviews as TopicMaleParkinson DiseaseProfessional-Family RelationsQualitative ResearchSpouses

Identifiers

PMID27571437
PMCPMC5332516
OpenAlexW2517525300

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.