ArticleAMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science2016
To Share or Not to Share: Ethical Acquisition and Use of Medical Data.
Article in AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed.
- Diffusion Model-based Medical Image Generation as a Potential Data Augmentation Strategy for AI Applications.Current medical imaging · 2025Article
- Monitoring oral health remotely: ethical considerations when using AI among vulnerable populations.Frontiers in oral health · 2025Article
- Quantum classical hybrid convolutional neural networks for breast cancer diagnosis.Scientific reports · 2024Article
- Patient and researcher stakeholder preferences for use of electronic health record data: a qualitative study to guide the design and development of a platform to honor patient preferences.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Local data commons: the sleeping beauty in the community of data commons.BMC bioinformatics · 2022Article
- Knowledge and Attitudes Among Life Scientists Toward Reproducibility Within Journal Articles: A Research Survey.Frontiers in research metrics and analytics · 2021Article
- How should we think about clinical data ownership?Journal of medical ethics · 2020Article
- Privacy-preserving distributed learning of radiomics to predict overall survival and HPV status in head and neck cancer.Scientific reports · 2020Article
- Advances in Sharing Multi-sourced Health Data on Decision Support Science 2016-2017.Yearbook of medical informatics · 2018Review
- Physicians differ in their perceptions of sensitive medical records: Survey and interview study.Health informatics journalArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The Health Information Technology for Economic and Clinical Health (HITECH) Act proposes the meaningful use of interoperable electronic health records throughout the United States health care delivery system as a critical national goal. As we have moved from medical records on paper to interoperable electronic health records, the rapid and easy sharing of medical data through the Internet makes medical data insecure. Electronic data is easy to share but many steps to ensure security of the data need to be taken. Beyond medical data security, we need to ethically acquire, use and manage data so that all people involved with the data from producer to data manager are recognized and respected. This paper advocates that sharing medical data can be ethically the right choice for everyone in health care if data sharing guidelines are available for people to use, modify and strengthen for specific purposes.
Identifiers
27570683PMC5001759What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.