ArticleAMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science2016
My Cancer Genome: Evaluating an Educational Model to Introduce Patients and Caregivers to Precision Medicine Information.
Article in AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Health Literacy Interventions in Cancer: a Systematic Review.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021Pooled it
- Extradural spinal melanoma: is it primary or metastatic? A case report with a brief review of literature.Diagnostic pathology · 2024Review
- Identifying and addressing the needs of caregivers of patients with cancer: evidence on interventions and the role of patient advocacy groups.Future oncology (London, England) · 2024Review
- Recurrent Somatic Copy Number Alterations and Their Association with Oncogene Expression Levels in High-Grade Ovarian Serous Carcinoma.Life (Basel, Switzerland) · 2023Article
- All EGFR mutations are (not) created equal: focus on uncommon EGFR mutations.Journal of cancer research and clinical oncology · 2023Article
- My Cancer Genome: Coevolution of Precision Oncology and a Molecular Oncology Knowledgebase.JCO clinical cancer informatics · 2021Article
- Clinicopathological features and prognostic implications of ASCL1 expression in surgically resected small cell lung cancer.Thoracic cancer · 2021Article
- Liquid biopsy-based tumor profiling for metastatic colorectal cancer patients with ultra-deep targeted sequencing.PloS one · 2020Article
- A Review of Precision Oncology Knowledgebases for Determining the Clinical Actionability of Genetic Variants.Frontiers in cell and developmental biology · 2020Review
- Article
- GliomaDB: A Web Server for Integrating Glioma Omics Data and Interactive Analysis.Genomics, proteomics & bioinformatics · 2019Article
- IGNITE network: Response of patients to genomic medicine interventions.Molecular genetics & genomic medicine · 2019Article
- Article
- Internet-Based Assessment of Oncology Health Care Professional Learning Style and Optimization of Materials for Web-Based Learning: Controlled Trial With Concealed Allocation.Journal of medical Internet research · 2017Article
- Assessing Genetic Literacy Awareness and Knowledge Gaps in the US Population: Results from the Health Information National Trends Survey.Public health genomics · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
This study tested an innovative model for creating consumer-level content about precision medicine based on health literacy and learning style principles. "Knowledge pearl" videos, incorporating multiple learning modalities, were created to explain genetic and cancer medicine concepts. Cancer patients and caregivers (n=117) were randomized to view professional-level content directly from the My Cancer Genome (MCG) website (Group A; control), content from MCG with knowledge pearls embedded (Group B), or a consumer translation, targeted at the sixth grade level, with knowledge pearls embedded (Group C). A multivariate analysis showed that Group C, but not Group B, showed greater knowledge gains immediately after viewing the educational material than Group A. Statistically significant group differences in test performance were no longer observed three weeks later. These findings suggest that adherence to health literacy and learning style principles facilitates comprehension of precision medicine concepts and that ongoing review of the educational information is necessary.
Identifiers
27570660PMC5001739What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.