Evidence map›Paper›PMID 27552813›Full record

ArticleInternational journal of bipolar disorders2016

Online information seeking by patients with bipolar disorder: results from an international multisite survey.

Jörn Conell, Rita Bauer, Tasha Glenn, Martin Alda, Raffaella Ardau, Bernhard T Baune, Michael Berk, Yuly Bersudsky, Amy Bilderbeck, Alberto Bocchetta and 60 more

Erratum issuedAbstract read
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In one paragraph

Article in International journal of bipolar disorders, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 20 papers.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed.

  1. Article
  2. A content-quality and optimization analysis of YouTube as a source of patient information for bipolar disorder.Saudi pharmaceutical journal : SPJ : the official publication of the Saudi Pharmaceutical Society · 2024
    Article
  3. Article
  4. Review
  5. Article
  6. Review
  7. Article
  8. Survey of psychiatrist use of digital technology in clinical practice.International journal of bipolar disorders · 2020
    Article
  9. Review
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Behavioural biomarkers and mobile mental health: a new paradigm.International journal of bipolar disorders · 2018
    Article
  17. Article
  18. Review
  19. Electronic monitoring of self-reported mood: the return of the subjective?International journal of bipolar disorders · 2016
    Review
  20. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

70 authors.

Jörn ConellDepartment of Psychiatry and Psychotherapy, University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
Rita BauerDepartment of Psychiatry and Psychotherapy, University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
Tasha GlennChronoRecord Association, Fullerton, CA, USA.
Martin AldaDepartment of Psychiatry, Dalhousie University, Halifax, Nova Scotia, Canada.
Raffaella ArdauUnit of Clinical Pharmacology, University Hospital of Cagliari, Cagliari, Italy.
Bernhard T BauneDiscipline of Psychiatry, School of Medicine, University of Adelaide, Adelaide, SA, Australia.
Michael BerkIMPACT Strategic Research Centre, School of Medicine, Deakin University, Geelong, VIC, Australia.
Yuly BersudskyDepartment of Psychiatry, Faculty of Health Sciences, Ben Gurion University of the Negev; Beer Sheva Mental Health Center, Beer Sheva, Israel.
Amy BilderbeckDepartment of Psychiatry, University of Oxford, Warneford Hospital, Oxford, UK.
Alberto BocchettaSection of Neurosciences and Clinical Pharmacology, Department of Biomedical Sciences, University of Cagliari, Sardinia, Italy.
Letizia BossiniDepartment of Molecular Medicine, Department of Mental Health (DAI), University of Siena, University of Siena Medical Center (AOUS), Siena, Italy.
Angela Marianne Paredes CastroIMPACT Strategic Research Centre, School of Medicine, Deakin University, Geelong, VIC, Australia.
Eric Yat Wo CheungDepartment of General Adult Psychiatry, Castle Peak Hospital, Hong Kong, China.
Caterina ChillottiUnit of Clinical Pharmacology, University Hospital of Cagliari, Cagliari, Italy.
Sabine ChoppinAP-HP, Hôpitaux Universitaires Henri-Mondor, Créteil, France.
Maria Del ZompoSection of Neurosciences and Clinical Pharmacology, Department of Biomedical Sciences, University of Cagliari, Sardinia, Italy.
Rodrigo DiasBipolar Disorder Research Program, Department of Psychiatry, University of São Paulo Medical School, São Paulo, Brazil.
Seetal DoddIMPACT Strategic Research Centre, School of Medicine, Deakin University, Geelong, VIC, Australia.
Anne DuffyDepartment of Psychiatry, University of Calgary, Calgary, Canada.
Bruno EtainAP-HP, Hôpitaux Universitaires Henri-Mondor, INSERM U955 (IMRB), Université Paris Est, Créteil, France.
Andrea FagioliniDepartment of Molecular Medicine, Department of Mental Health (DAI), University of Siena, University of Siena Medical Center (AOUS), Siena, Italy.
Julie GarnhamDepartment of Psychiatry, Dalhousie University, Halifax, Nova Scotia, Canada.
John GeddesDepartment of Psychiatry, University of Oxford, Warneford Hospital, Oxford, UK.
Jonas GildebroDepartment of Affective Disorders, Q, Mood Disorders Research Unit, Aarhus University Hospital, Aarhus, Denmark.
Ana Gonzalez-PintoDepartment of Psychiatry, University Hospital of Alava, University of the Basque Country, CIBERSAM, Vitoria, Spain.
Guy M GoodwinDepartment of Psychiatry, University of Oxford, Warneford Hospital, Oxford, UK.
Paul GrofMood Disorders Center of Ottawa, Ottawa, Canada.
Hirohiko HarimaDepartment of Psychiatry, Tokyo Metropolitan Matsuzawa Hospital, Setagaya, Tokyo, Japan.
Stefanie HasselDepartment of Psychology & Aston Brain Centre, Aston University, Birmingham, UK.
Chantal HenryAP-HP, Hôpitaux Universitaires Henri-Mondor, INSERM U955 (IMRB), Université Paris Est, Créteil, France.
Diego Hidalgo-MazzeiBipolar Disorders Program, Hospital Clinic, University of Barcelona, IDIBAPS, CIBERSAM, Barcelona, Catalonia, Spain.
Vaisnvy KapurDepartment of Clinical Psychology, NIMHANS, Bangalore, 560029, India.
Girish KunigiriLeicestershire Partnership NHS Trust, Leicester, UK.
Beny LaferBipolar Disorder Research Program, Department of Psychiatry, University of São Paulo Medical School, São Paulo, Brazil.
Chun LamDepartment of Psychiatry, Kowloon Hospital, Hong Kong, China.
Erik Roj LarsenDepartment of Affective Disorders, Q, Mood Disorders Research Unit, Aarhus University Hospital, Aarhus, Denmark.
Ute LewitzkaDepartment of Psychiatry and Psychotherapy, University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
Rasmus LichtAalborg University Hospital, Psychiatry, Aalborg, Denmark.
Anne Hvenegaard LundDepartment of Affective Disorders, Q, Mood Disorders Research Unit, Aarhus University Hospital, Aarhus, Denmark.
Blazej MisiakDepartment of Psychiatry, Wroclaw Medical University, Wroclaw, Poland.
Patryk PiotrowskiDepartment of Psychiatry, Wroclaw Medical University, Wroclaw, Poland.
Scott MonteithMichigan State University College of Human Medicine, Traverse City Campus, Traverse City, MI, USA.
Rodrigo MunozDepartment of Psychiatry, University of California San Diego, San Diego, CA, USA.
Takako NakanotaniAffective Disorders Research Project, Tokyo Metropolitan Institute of Medical Science, Setagaya, Tokyo, Japan.
René E NielsenAalborg University Hospital, Psychiatry, Aalborg, Denmark.
Claire O'DonovanDepartment of Psychiatry, Dalhousie University, Halifax, Nova Scotia, Canada.
Yasushi OkamuraDepartment of Psychiatry, Tokyo Metropolitan Matsuzawa Hospital, Setagaya, Tokyo, Japan.
Yamima OsherDepartment of Psychiatry, Faculty of Health Sciences, Ben Gurion University of the Negev; Beer Sheva Mental Health Center, Beer Sheva, Israel.
Andreas ReifDepartment of Psychiatry, Psychosomatic Medicine and Psychotherapy, University Hospital Frankfurt, Goethe-University, Frankfurt am Main, Germany.
Philipp RitterDepartment of Psychiatry and Psychotherapy, University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
Janusz K RybakowskiDepartment of Adult Psychiatry, Poznan University of Medical Sciences,, Poznan, Poland.
Kemal SagduyuDepartment of Psychiatry, University of Missouri Kansas City School of Medicine, Kansas City, MO, USA.
Brett SawchukDepartment of Psychiatry, University of Calgary, Calgary, Canada.
Elon Schwartz, Croton on Hudson, NY, USA.
Ângela Miranda ScippaDepartment of Neuroscience and Mental Health, Federal University of Bahia, Salvador, Brazil.
Claire SlaneyDepartment of Psychiatry, Dalhousie University, Halifax, Nova Scotia, Canada.
Ahmad Hatim SulaimanDepartment of Psychological Medicine, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia.
Kirsi SuominenCity of Helsinki, Department of Social Services and Health Care, Psychiatry, Helsinki, Finland.
Aleksandra SuwalskaDepartment of Adult Psychiatry, Poznan University of Medical Sciences,, Poznan, Poland.
Peter TamDepartment of Psychiatry, Department of Medicine, University of Hong Kong, Hong Kong, China.
Yoshitaka TatebayashiAffective Disorders Research Project, Tokyo Metropolitan Institute of Medical Science, Setagaya, Tokyo, Japan.
Leonardo TondoHarvard Medical School-McLean Hospital, Boston, MA, USA.
Eduard VietaBipolar Disorders Program, Hospital Clinic, University of Barcelona, IDIBAPS, CIBERSAM, Barcelona, Catalonia, Spain.
Maj VinbergPsychiatric Center Copenhagen, Copenhagen, Denmark.
Biju ViswanathDepartment of Psychiatry, NIMHANS, Bangalore, 560029, India.
Julia VolkertDepartment of Psychiatry, Psychosomatic Medicine and Psychotherapy, University Hospital Frankfurt, Goethe-University, Frankfurt am Main, Germany.
Mark ZetinDepartment of Psychology, Chapman University, Orange, CA, USA.
Iñaki ZorrillaDepartment of Psychiatry, University Hospital of Alava, University of the Basque Country, CIBERSAM, Vitoria, Spain.
Peter C WhybrowDepartment of Psychiatry and Biobehavioral Sciences, Semel Institute for Neuroscience and Human Behavior, University of California Los Angeles (UCLA), Los Angeles, CA, USA.
Michael BauerDepartment of Psychiatry and Psychotherapy, University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany. Michael.Bauer@uniklinikum-dresden.de.ORCID http://orcid.org/0000-0002-2666-859X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInformation seeking is an important coping mechanism for dealing with chronic illness. Despite a growing number of mental health websites, there is little understanding of how patients with bipolar disorder use the Internet to seek information.

methodsA 39 question, paper-based, anonymous survey, translated into 12 languages, was completed by 1222 patients in 17 countries as a convenience sample between March 2014 and January 2016. All patients had a diagnosis of bipolar disorder from a psychiatrist. Data were analyzed using descriptive statistics and generalized estimating equations to account for correlated data.

results976 (81 % of 1212 valid responses) of the patients used the Internet, and of these 750 (77 %) looked for information on bipolar disorder. When looking online for information, 89 % used a computer rather than a smartphone, and 79 % started with a general search engine. The primary reasons for searching were drug side effects (51 %), to learn anonymously (43 %), and for help coping (39 %). About 1/3 rated their search skills as expert, and 2/3 as basic or intermediate. 59 % preferred a website on mental illness and 33 % preferred Wikipedia. Only 20 % read or participated in online support groups. Most patients (62 %) searched a couple times a year. Online information seeking helped about 2/3 to cope (41 % of the entire sample). About 2/3 did not discuss Internet findings with their doctor.

conclusionOnline information seeking helps many patients to cope although alternative information sources remain important. Most patients do not discuss Internet findings with their doctor, and concern remains about the quality of online information especially related to prescription drugs. Patients may not rate search skills accurately, and may not understand limitations of online privacy. More patient education about online information searching is needed and physicians should recommend a few high quality websites.

Identifiers

PMID27552813
PMCPMC4995194

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.