ArticleJournal of adolescent and young adult oncology2017
Patterns of Loss to Follow-Up Care Among Childhood Cancer Survivors.
Article in Journal of adolescent and young adult oncology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
31 citing papers in PubMed, 2 syntheses or guidelines pooled it, 67 citations in OpenAlex.
- Artificial Intelligence for Diagnosis, Risk Stratification, and Prognosis of Neuroblastoma - A Systematic Review and Meta-Analysis.Current oncology reports · 2026Pooled it
- Transition from pediatric to adult follow-up care in childhood cancer survivors-a systematic review.Journal of cancer survivorship : research and practice · 2021Pooled it
- Transition outcomes in a diverse cohort of higher-risk young adult survivors of childhood cancer in an established care model.Journal of cancer survivorship : research and practice · 2026Article
- Pediatric Cancer Survivorship: A Review.Pediatric annals · 2025Review
- Article
- Stepping into adulthood: pediatric cancer survivors and their parents' perspectives on the transition from pediatric to adult care.BMC health services research · 2025Article
- Multilevel Facilitators and Barriers to Healthcare Organization and Delivery Among Childhood Cancer Survivors.Pediatric blood & cancer · 2025Article
- Characterization of Patient Activation among Childhood Cancer Survivors in the St. Jude Lifetime Cohort Study (SJLIFE).Cancers · 2024Article
- Longitudinal needs and cancer knowledge in Swiss childhood cancer survivors transitioning from pediatric to adult follow-up care: results from the ACCS project.Discover oncology · 2024Article
- Risk Factors for Loss to Follow Up in Pediatric Supracondylar Humerus Fractures.Journal of the Pediatric Orthopaedic Society of North America · 2024Article
- Exploring the perspective of adolescent childhood cancer survivors on follow-up care and their concerns regarding the transition process-A qualitative content analysis.Cancer medicine · 2024Article
- Quantitative computed tomography analysis of body composition changes in paediatric patients with acute lymphoblastic leukaemia.British journal of haematology · 2024Article
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- Article
- Clinic reported facilitators and barriers to pediatric cancer survivor care delivery among survivorship clinics: A fishbone analysis.Pediatric blood & cancer · 2023Article
- Article
- Integrating primary care and childhood cancer survivorship care: a scoping review protocol.BMJ open · 2022Article
- Article
- Prevalence of hearing screening failures in low-risk childhood cancer survivors.Pediatric blood & cancer · 2022Article
- Frequency of obesity and metabolic syndrome in childhood leukemia and lymphoma survivors.Diabetology & metabolic syndrome · 2022Article
Corrections and comments
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Authors and funding
6 authors at 2 institutions in 1 country.
Funding
Abstract
purposeSurveillance for long-term complications related to previous cancer therapy can help diagnose/manage chronic health conditions in childhood cancer survivors and improve survivor quality of life. However, a challenge to delivering long-term care to childhood cancer survivors is loss to follow-up; many patients discontinue care at specialized survivor care centers. The purpose of this study was to examine patterns of loss to follow-up among a cohort of childhood cancer survivors.
methodsThis retrospective study examined follow-up patterns among a nonrandom representative sample of 370 childhood cancer survivors among 1116 patients from a single institution. The median age of patients at diagnosis was 10.2 years (range <1-21). Factors potentially related to follow-up were utilized to evaluate patterns of follow-up across 5-year intervals following completion of active therapy. The association between patient characteristics and follow-up was evaluated using univariate and multivariate binomial regression models.
resultsThe probability of follow-up 1-5 years post-treatment was 91.2% (89.7%-92.5%) but dropped to 68.5% (66.2%-70.8%) during years 6-10, 47.7% (45.0%-50.3%) during years 11-15, and continued to steadily decrease over time. Overall, white race, diagnoses at younger ages, patients with lymphomas/leukemias, and decade of diagnosis were each associated with somewhat better rates of follow-up.
conclusionsThese findings highlight the lack of follow-up by adult survivors of childhood cancer with only approximately one-half of patients returning for follow-up 10 years after completion of therapy. Interventions focused on educating both patients and primary care physicians may help to increase long-term follow-up care among this at-risk population.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.