Evidence map›Paper›PMID 27516638›Full record

ArticleBulletin of the World Health Organization2016

The importance of assessing self-reported HIV status in bio-behavioural surveys.

Lisa G Johnston, Miriam Lewis Sabin, Dimitri Prybylski, Keith Sabin, Willi McFarland, Stefan Baral, Andrea A Kim, H Fisher Raymond

Open access · diamondAbstract read
In one paragraph

Article in Bulletin of the World Health Organization, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 1 pooled it
1.1field-weighted citation impact, top 22% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 2 countries.

Lisa G JohnstonGlobal Health Sciences, University of California - San Francisco, San Francisco, United States of America (USA).
Miriam Lewis SabinGlobal Fund to Fight AIDS, Tuberculosis and Malaria, Geneva, Switzerland.
Dimitri PrybylskiGlobal AIDS Program Asia Regional Office, Centers for Disease Control and Prevention, Nonthaburi, Thailand .
Keith SabinJoint United Nations Programme on HIV/AIDS, 20 avenue Appia, CH-1211 Geneva 27, Switzerland .
Willi McFarlandGlobal Health Sciences, University of California - San Francisco, San Francisco, United States of America (USA).
Stefan BaralCenter for Public Health and Human Rights, Johns Hopkins Bloomberg School of Public Health, Baltimore, USA .
Andrea A KimDivision of Global HIV/AIDS, United States Centers for Disease Control and Prevention, Atlanta, USA .
H Fisher RaymondGlobal Health Sciences, University of California - San Francisco, San Francisco, United States of America (USA).
Global Fund to Fight AIDS, Tuberculosis and Malaria · CHJohns Hopkins University · US

Funding

Ujima Mentoring ProgramP30MH062246 · NIMH · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI MALLORY O JOHNSON · 2001 to 2026
$57.4M
NIMH NIH HHS P30 MH062246World Health Organization 001
6 · The paper itself

Abstract

In bio-behavioural surveys measuring prevalence of infection with human immunodeficiency virus (HIV), respondents should be asked the results of their last HIV test. However, many government authorities, nongovernmental organizations, researchers and other civil society stakeholders have stated that respondents involved in such surveys should not be asked to self-report their HIV status. The reasons offered for not asking respondents to report their status are that responses may be inaccurate and that asking about HIV status may violate the respondents' human rights and exacerbate stigma and discrimination. Nevertheless, we contend that, in the antiretroviral therapy era, asking respondents in bio-behavioural surveys to self-report their HIV status is essential for measuring and improving access to - and coverage of - services for the care, treatment and prevention of HIV infection. It is also important for estimating the true size of the unmet needs in addressing the HIV epidemic and for interpreting the behaviours associated with the acquisition and transmission of HIV infection correctly. The data available indicate that most participants in health-related surveys are willing to respond to a question about HIV status - as one of possibly several sensitive questions about sexual and drug use behaviours. Ultimately, normalizing the self-reporting of HIV status could help the global community move from an era of so-called exceptionalism to one of destigmatization - and so improve the epidemic response worldwide.

Indexed as

Biobehavioral SciencesHIV SeropositivitySelf ReportHealth Services Needs and DemandHomosexuality, MaleHuman RightsHumansMaleSocial DiscriminationSocial Stigma

Identifiers

PMID27516638
PMCPMC4969987
OpenAlexW2505380152

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.